Seeking clarification: I don’t know how to add a... - Headway

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Seeking clarification

Mike442 profile image
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I don’t know how to add a second image, but the last sentence continues as: “area of bleeding in your brain with associated swelling around the bleeding area”

I posted for the first time a couple of months ago. 17 years ago, when I was 12, I fell 15 feet through a barn roof onto concrete. I don’t remember the event, I had no rehabilitation and I refused to think or talk about what happened to me. Recently I’ve been having a lot of issues, such as panic attacks, which grew so bad that I’ve had to take time off work. I’ve struggled with these panic attacks along with things such as anxiety and OCD for as long as I can remember, but over time they have gotten a lot worse. I done a lot of exploring to figure out why I am the way I am, and that lead me to finally look into what happened to me when I fell through that roof in 2007.

Turns out all of my problems COULD be linked to a brain injury. The only problem is, my medical records does not specifically say ‘brain’ injury - my primary diagnosis was a ‘traumatic head injury’. I’ve been told by countless people that head injury and brain injury are interchangeable - but because of the way my mind works - I won’t allow myself to believe I could have a brain injury until I have it in writing.

I asked my GP to write to me explaining the different terminologies used and if I actually have a ‘head injury’ or a ‘brain injury’. The response was great, I hoped it would be enough to convince me - but unfortunately it seems like it wasn’t - and I think it’s because of one small detail - my GP wrote “could also be classed as a form of brain injury” - the key word in this sentence for me is “could” - as that specific word isn’t definitive - therefore with the way my mind works, I still don’t have a concrete answer.

Does anyone have any knowledge about what defines a brain injury?

Thanks, Mike

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Mike442 profile image
Mike442
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4 Replies
pinkvision profile image
pinkvision

This definition is from a US site; you have had a brain injury.

ninds.nih.gov/health-inform...

You can find the agreed definition on this site, it was defined by David Menon, this is his paper but it is copyrighted, however if you scroll down and click on the 'free PMC' articles you will find it referenced in the other papers.

pubmed.ncbi.nlm.nih.gov/210...

skydivesurvivor profile image
skydivesurvivor

suffered mine in 2000, brain scans shows dead area in frontal lobe 20+ years of recovery/adaption still struggle to accept new life!! Get a brain scan?!!

JPBeeves profile image
JPBeeves in reply to skydivesurvivor

Yes I would get a n MRI SCAN of your brain, this will show any damage to your brain,any damage to your brain is classed as a brain injury,your brain injury will be a traumatic brain injury AKA TBI

cat3 profile image
cat3

Hi Mike. A Subdural haematoma is a collection of blood within the brain from a damaged blood vessel so, yes, you have a brain injury.

I suggest you contact the Headway helpline on 0808 800 2244 for print-outs explaining your brain injury, and for the best way forward in coping with its after effects.

Many of us here, like yourself, have permanent brain injuries and have learned over the years to manage many of the problematic after effects. Some symptoms can be dealt with by changes in lifestyle and sticking to routines of self-care (avoidance of excess stimulus/regular light exercise/healthy diet/good hydration, and acceptance of shortcomings).

'Burnout' from straying beyond our physical limitations, .......something I'm guilty of despite knowing the consequences, can be avoided by 'Pacing rather than racing'.

Other, less manageable issues, may need input from other areas, whether neuropsych, physio, medication ? Maybe a chat with the helpline team can guide you on that...

Take care Mike.

Cat...

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