just wanted to share something if nothing else to make you all smile.this time last year my boy was pretty much semi comatose.the term they use is minimally concious.nil by mouth all whistles/bells etc.today i visited and a young lady came in and asked what he wanted for takeaway night.he asked both verbally and with word board for a 10 inch bol pizza garlic sauce and can 7 up.he was kinda vexed no chinese was on offer tonite,but thems the breaks..its very very hard for us mams,but i go through all of my dairies and am gobsmacked some of the things i wrote.they were though at the time what i felt most of it not good.i guess what im trying to say is never give up.i have made a start writing my experiences,they wont be the same as others,but if i can just reach and share what i learned/know got to be for the good...
just to share: just wanted to share something if... - Headway
just to share
Hi D, your post certainly raised a smile for me. Hope Sean really enjoys his takeaway tonight - he really has come a long way. Yes it is very hard for us mams but we have been with them at every stage and will continue to be as we know giving up isn’t an option.
I am sure any experiences/advice that can be passed to others will be welcomed by other families.
Take care. Nanapal x
always my freind,meeting on wed not taking any prisoners lynne.i loved pictures you sent.that isla is a chicken soo cute...i got army pension sorted and got sick note from dr that pretty much says im a nut job(go figure)will let you know crack after wedxx
Really heartening news D. It's been one hell of a challenge for you both but heartening to hear that further signs of progress and 'normality' are kicking in.
Love to you both as always.. Cat Xx
firstly,just to say thanks for being constant support/i would say freind means a lot.ive gone back through my notebooks im a bit shocked how my emotions were at times.i would imagine its normal though given my situation.i cant honestly have happen to others what happened to me/sean.meeting with unit wed i wont be taking prisoners but from costa n/east to the midlands wish you best will post a funny story.
🤍 Xx
Hi D, I’ve got tears in my eyes, and a big smile on my face, I think that’s what we should always pass to anyone joining our group, onwards and upwards and never ever give up HOPE, and I hope Chinese is on the menu next time for Sean lots of love Alice xx
hey alice,thanks for lovely reply,you always respond to my mad posts.they are indeed bonkers i dont care all that much.if it made you smile works for me,you are of course correct hope is king much love to youxx
Hi D, I’ve read and empathised with what you and your son have been through this last year so it’s lovely to hear your boy is fighting on and has come such a long way. I haven’t kept a diary but kind of wished I had as my son has also reached the milestone of being able to communicate what he’d like for tea … it’s always chicken ;)) These are big steps; ones I never thought he’d reach.
Wishing your boy continued progress! Lots of love xx
well b,thankyou for msg.yes i do agree chicken is a thing!!for myself notso.i pass on my journey to visit 9 fish shops by time i get home im demented...you see what can be done and achieved?these are tough lads love.it is my nature anyway to sit every night and keep what you could call a journal.i got 6 notepads now!i would love to speak with you to share our situations.also b,never too late to get a notepad..much lovexx
That's lovely news. I kept a diary for the first 3 months, whilst he was in hospital, and I wish I'd kept it up as I think it's a really good thing to do. 🤞 He goes on improving. X
thanks f/p.im sitting at my large table keeping cool surrounded by books,files,and various things like organised chaos.thats just how it is though right?listening to radio 2.im trying hard to keep up with all ive had to deal with so,for me easy to write all down.you could start now never too late...get a notepad day/date and write what happened every day.i promise it will help you.please stay in touch,always here for support/chat/moanxxx
That's really good, so happy for you. There's no change here from 12 months ago. My partner would have loved this weather, he'd be out in the garden basking in the sunshine. All the best.
really so sorry to hear this b,its a long time for yr man to be like this.i would be very interested for you to tell me your experiences.i would say,looking back and reading my notebooks/writings forgetting the 5 months i didnt see him at acute hospital(covid)i think my boy all told 8 months maybe?i would be happy to share and help you any way i can.you have my support totally.thanks for your response and wishes my very best wishes to youxx
Flipping love this!!!I remember some of your first posts. I don't think anyone could understand that moment when you look back and think "(insert swear here) did that actually happen, was that real?!" And you look where you are now and the progress is so very very significant. These are no small gains when you look at the big picture! These gains are massive and bloody hard won. I'm so so glad to read these words and I'm grinning that he was not impressed at the lack of a Chinese option! 😆😆😆❤️
PIP update so far 
Questions to ask
Should I just accept that there's no hope?
Struggling to keep to keep it together...
So, has anybody else been asked by family to help them plan your funeral in case you die?
