on it goes,more drama

[Dogsabighelp]

so son has been at new care unit since 3rd may.the plusses;pretty easy for me to get to(now i have bus times etc sorted)the place is really quite out in the sticks so its the same nice people on bus each week,explained myself to "dave" who must have thought i was a deranged stalker!we walk together now every friday.on a good day i can be there and back within 5 hours which beats the 8/9 hours travelling to m/bro and n/castle.also son seems to be a lot more confident able to express himself better,but this is more to do with his own strength of character and my pushing him to take no crap from anyone.as some of you will know taking crap from people is something i dont do!!!so,there are some meetings and some people i will have to be dealing with very soon.there are so many problems to overcome,if ive learnt anything this last 18 months its not to take everything as gospel.the "professionals"are not always right,ask questions,ask some more,if youre still not happy?complain...ive been looking back over my journals and feel that i could perhaps offer some advice to the poor people that are going to encounter similar issues as myself.one thing i know for sure if i heard of someone going through it,i would be knocking on their door to help in any way i could.maybe i should write my story?any thoughts guys?....

[cat3]

If you've been keeping a journal I guess you already have the makings of your & Sean's story.

I'd say YES D., get your story out and help others dealing with similar predicaments to feel less isolated, and to offer shortcuts for dealing with issues you've had to deal with the hard way.

You'd be providing a great service for mothers, or any loved ones, struggling to support and stand up for brain injured folk.

My best wishes to you m'love and for Sean's continuing progress.... love always, Cat Xx

[Tigg85]

I don’t know you or your story but yes if you can/have the time I would definitely look into writing a book, it will offer support to others who maybe lost in the system offering light at the end of the tunnel!! My mum kept a sort of diary of when I was having my issues we would never publish it but if we did I hope it would help others!!

I really hope your son is doing better take care xxxxxx

[Alibongo60]

Hi D, sounds good idea to me too, loads of advice there for people just starting on this long lonely journey, glad to hear you and your boy are doing well, onwards and upwards as a mutual friend often says eh Nan, with you in his corner he can only go one way lots of love Alice xx

[Pairofboots]

Hi ye. I'm really pleased that Sean is doing well, and that your travels are so much easier. 🍀

[Silkwood20]

Hi, well the book idea sounds fine to me. Over the last year I have (almost obsessionally at times) read a number of books about brain injury and people's experiences of it.This site is great too, but in a book you could go into things in more depth.

Good to hear you are getting into a new routine and meeting new people as you negotiate your new part of this journey, I can relate to that too. And it's good to hear your son is doing a little better. Very Best wishes.

[Dogsabighelp in reply to Silkwood20]

hey thanks!more about(im thinking)what to do/practical stuff etc.i was overwhelmed with various over phone this/that...?