Any advice on what to expect at all please?

[GiantJ]

Dear all!

At the beginning of June 22, I suffered a very unexpected ruptured brain aneurysm. I was rushed to hospital where I had a coiling procedure and recovered in hospital for little under two weeks.

I’m home, tired, emotional, too busy for this nonsense! I have two kids aged 20 and five year old and I desperately want to feel some semblance of normal again.

Physically I’ve recovered incredibly quickly. I dont think the gravity of it has sunk in yet.

Any and all advice very gratefully appreciated. I need more input! I hate the not knowing.

Am I likely to feel much worse again or are there no real answers?!

My needs assessment is a video call almost 8 weeks from now and the idea of sitting in the dark till then is painful.

Thanks so much for your time folks ✌🏻

[Kathykathy]

Whenever I reply to someone in here I try to put a positive spin and would like to do the same for you. But I think you are still in shock. You have had a life changing event. And it will be an eventful journey. Please try to be kind to yourself I hope with your young age you will be one that breezes through. I had a ruptured anurism and coiled. Given up for dead but survived. I'm now 6 years post. I also with pressure in brain had 2 eye haemorrhages and two eye ops now waiting cataract surgery on both eyes as a consequence and very defective and distorted eye sight. Please rationalise what has happened to try and see the seriousness and accept and certainly for now take time out of a busy go getting life. It is special to survive these events. A broken bone can take 6 weeks plus rehabilitation. You have faced death, had an operation and likely an area of brain died so some functions may be affected. None of us like our life's plans to be walked all over but please owe it to yourself and a better recovery to be a patient for a time to let the body, mind and emotions recover. It is a serious event and impact, and I hope you will be the one that gets the old you back and few effects. You will need alot of good fortune for that. We are all different with different effects and degrees of effects but effects there will be. Good luck happy to say more but you need to be prepared to hear and read things that won't be so easy. Have you looked at good old Google. Acceptance will be. Helped with gained understanding

[ABIfamily]

Hi.Welcome. You sound as if you are doing amazingly well! The wait for follow up does sound frustratingly long. It is very hard to know what to expect and what is 'normal' now.

The Headway website has a lot of resources and leaflets that can explain some of what you might be feeling eg fatigue or mood changes. They also have a helpline, if you need to talk to someone who truly understands how you are feeling now.

Same You and Different Strokes are other resources.

I know you will want to carry on with your life as if little has changed, but do take it easy and rest. X

[Alibongo60]

Hi GiantJ, and welcome to the site, we here know how you feel and can sympathise. It will be a struggle to take life easier with a five year old, hopefully you have lots of support but you will feel exhausted, and overwhelmed. You have been very lucky, you sound very similar to me I recovered initially from the rupture with I thought very little effect, but over time it became evident I did have problems with memory, balance, word finding, head pain, etc, I initially returned to work but I have had to retire and now had to take things easy as my aneurysm regrew and caused more problems. I hope you are able to get the help and support you need, this site is brilliant for answering any questions from lovely people who have been there and got the t shirt, take it easy and take care love Alice xx

[Painting-girl]

So sorry to hear this G. People are here for you in this forum, so you can talk about all the weirdness of a new brain injury here, and people will get it. But do ring the central Headway helpline for support and information ( in office hours) as well, you'll always get a sympathetic and informed ear there too - on 0808 800 2244.