Anyone suffered Intracerebal Haemorrhage with no cause found?

[Juleeas]

Hi, I’m new to the forum. I’m 41 and had an IC in September. All the usual scans etc showed no underlying cause so I have a delayed MRI scan In December. Apparently if they still find no cause at the point I will be referred to a heart hospital to review. Has anyone had a similar experience? Thanks!

[cat3]

Hi Juleeas. I had a spontaneous subarachnoid haemorrhage in 2011. On admission, a scan showed the bleeding into the brain from a ruptured blood vessel. A later scan, after a coiling procedure, showed the coil sealing off the bleed and remnants of the contamination.

But it was later explained to me by the surgeon that causes of intracerebral bleeds, in the absence of trauma, are usually unknown but due to weakness in a blood vessel caused by excessively high blood pressure.

So an underlying cause was never discussed apart from when my family asked 'Why ?' They in turn were asked did I smoke, was I stressed and did I have a history of high blood pressure. It was a 'yes' to all three but there was never a question of further investigations and no issue with lack of causal evidence.

So, other than the bleed, I didn't had a similar experience to yours m'dear but I'll be interested to hear how you get on in December....

Best wishes, Cat x

[Hidden]

Hi Juleeas,

Back in 2006 I survived a spontaneous intracerebral haemorrhage, at around the same age as you. It was quite a severe bleed which required one month in hospital, followed by one month intensive neuro rehab. The cause was never established by the medical team.

Upon discharge home two months later, I was so worried that I would have a further brain bleed. Since then, I have concluded that my previous unhealthy lifestyle was more than likely the contributing variables. That is: working in a very stressful job, smoking, high blood pressure and generally not looking after my health. Similar to Cat’s scenario.

The good news is that since then, there has been no further bleeds. I have maintained a healthy lifestyle through daily walks for at least half an hour, a balanced nutritious diet, and regularly monitor my blood pressure with a reliable blood pressure kit recommended by my GP. Which by the way, is good these days. This negates my fear factor. Which in turn, maintains my good mental health.

The body and mind are interdependent. As you probably know anyway. At the time, I struggled with the transition from the long stay in hospital to being back home alone, with the same worry that you are experiencing now. It is not easy. You have my empathy. All the best.