Ataxia following brain surgery

[EireAtaxic]

I've had brain surgery around 10 times, none since 2009 thank god, but that one did leave me with ataxia.

I spent 3 months in a transitional living unit learning to live on my own. I was told that I had ataxia by my neurosurgeon but no mention of a type. I also had radiotherapy.

Now I am married and I am father to the two noisiest kids in the world and I suffer from noise sensitivity.

Anyone else out there suffering from acquired ataxia? I am a member of the ataxia forum but it is move genetic type.

[sashaming1]

I found this on this site: "The Headway helpline is a confidential service, available to anyone with a question about brain injury - from survivors and carers to students and professionals. We can discuss a wide range of issues relating to brain injury, from the initial injury and its effects, to long-term rehabilitation and support.

Contact our helpline free on 0808 800 2244 or [e-mail]

We're open from 9am - 5pm, Monday to Friday. We look forward to hearing from you!

You can also get a wealth of brain injury information and details of Headway services near you on our website at headway.org.uk" FYI. Maybe this can be a start to be able to contact Headway. Maybe someone on this site has some ideas.

[EireAtaxic in reply to sashaming1]

Thanks for that. I am in Ireland, here we have Aquired Brain Injury Ireland, I recieved a great deal of help and assistance from them. Aquired ataxia is very rare over here.