Having hidden my disabilities for 37 years I've struggled to tell it to my family and they been great but i'm still very fearful of sharing this with the outside world. I met so many people over my life and I've been toying with the idea of letting all them all know via Social Media.
I dont like opening myself up to judgement and ridicule that social media promotes.
Is this a wise move? I only use facebook I cant use the others🙈🙈
Hi Stammers. I'm the same age as you. I became 'disabled' at the age of 14 although it took me years to admit this is what it was. I told myself I had a 'medical condition' but that I was no different to everyone else. Not true. Although I suffer little from day to day I do have limitations and recognise them now. I still struggle to tell people I am disabled though and perhaps always will. Its the look on their faces and them not knowing how to react I find difficult. Sharing your disability on social media is very brave and if it helps give you peace of mind I would say go for it.
Best wishes
Lulu
I've been reading your tale as it evolves. Firstly I would say be careful what you reveal via social media. It might be a quick way of informing people you know about your past, but it is then in the public domain, and people outside your circles can access it even if you have the most restricted security. You may have some that will say, oh that explains why he is as he is, and you will get the care symbol, and the caring messages. Some may say, oh I never knew that. You will also get some that say, have you seen what Stam is saying now. There will also be "friends" that will take the mick, some may say you don't need friends like this. You may also find some distance themselves, not knowing how to approach you.
Every action has a reaction, just be aware that you know the consequences.
I hear ya loud and clear pal I've gone off the idea anyway now. I struggle massively with judgement and lack of understanding. I am slowly telling my story via this forum because its private. I'm thinking and realising today that posting sumat like this on FB will only open me up to the fake concern. This is my journey now and I'm starting to make progress slowly and I'm not willing to put myself on the facebook chopping board with this story. Thanks for this pal it's always appreciated 👍👍
Hi Stammers,
I agree with Pair of Boots. I wouldn’t put your story out there on social media. There’s a lot of misunderstanding about brain injury and how it can affect people’s lives and I’ve found that most people don’t get it unless they’ve been through it themselves or have family or friends who live with it. Especially since you say you struggle with judgement and lack of understanding, I think social media could be more of a hindrance than a help to you. Good luck with it 👍
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Living with brain injury caused by hydrocephalus
