really just about at my limit

[Dogsabighelp]

hi all,what a nightmare few weeks ive had.i firstly dropped ipad on kitchen floor,its still in repair shop.naturally because its me,they cant find the parts...i bought this amazon fire thingey,we cant figure out how to retrieve my email,im using sons lap top now which is out of the ark,took me best part of a week to set up new email,as it turns out there is no volume so no facetime anyway...turned up for my visit last friday(i wasnt on visit list)someone had forgot to inform them i had phoned.my son lying there totally naked apart from paper pants.he was freezing cold,crash mats on floor either side of bed.the only things in wardrobe were 4 pair socks,2 of which wernt even his.he was asleep,well i say this,i tried several times to wake him,he was unresponsive.in just 4 weeks he has gone from flavour of month to persona no gratis.im unsure of what to do.im going to call and cancel tommorrows visit,they are aware that i dont have tech for communication.i will explain that i was very upset after last weeks visit,they are also aware of this.after nearly 7 months with so many battles,this is definatley one i shouldnt be taking on.its complete madness.where are my sons clothes?what drugs are they giving him?what it is program of rehab?the problem i have is my anger/frustration,ive already had a couple of outbursts this week.im going to need to sit back and have a think.my thinking is that,if i tell them im finding it hard to deal with visitsit may force them into some dialogue?sorry for rant guysxxx

[APAscot]

So sorry for all your stress and awful circumstances. Just keep on ranting.

[Marnie22]

Sorry things have been so awful for you. Don't apologise for ranting, we all need to do that sometimes.

[Hidden]

It's always the way isn't it how everything goes wrong at once!

I had an upset last week over a job interview that went wrong that was a video interview and I had worked really hard for it and logged into the computer and the company's internet had gone down and they weren't even apologetic and I became ever so upset and it had been due at 11.30 and then they wanted to have moved it to 1.30 and that afternoon I had plans I couldn't change.

After the disappointment I had gone out for a walk and I was upset and crying and had felt better after a walk.

What had upset me was their attitude rather than the net in itself going down as I do understand things happen.

It was one of those things that was beyond my control when that happened but at the time it felt like the end of the world.

[Dogsabighelp in reply to Hidden]

hiya,i used to have a life too until this happened.i did a zoom interveiw was offered a job.it was a bit dodgy got through it,did itmy son was gobsmacked i managed,to do.he did praise me a bit tho.two weeks later he in coma..

[New_beginning]

You rant as much as you need. Sad its virtual I want to hug you, we are all here for you x

[Skallagrigg]

Oh no do sorry for you rant away, now you have email, email the hospital, PALS, they should help with all your concerns , good luck

[Pairofboots]

Not again? You and your son have been through it. I am gob smacked the state of services.

You shouldn't have to, but I fear you will be back to chasing the senior management and the lead clinicians to get answers.

Don't cancel your visits, you want to be able to see what is going on with your own eyes. Document what you find, take pictures if you can. You ask where are his clothes, you need answers, and they need to know that this is about your sons dignity.

You say he was unresponsive, why? As you ask what meds are they giving him, and why? This is meant to be a rehab service, well they can't be doing much rehab if he is unresponsive and near naked.

What has changed from when he was first admitted, that you find your son like this now?

This isn't fair for either of you. Keep strong. As always, I and others are here for you.

Ian xx

[Dogsabighelp in reply to Pairofboots]

hi ian,didnt go for visit today to be honest im really not going to do anyone any favours in my current frame of mind.there have been so many issues/concerns in recent weeks.this facility is what i would call,(im not an expert,just from my experience)"smoke and mirrors,it is a new place so doesnt yet have a rating,but when you look it up its all singing/dancing/mary poppins..i think they were initially very keen to present a good account/presentation of themselves.when you consider i had been unable to see my son for 18 weeks and the only information about my sons condition/state was by the very lovely but pessemistic doctor at james cook,these people could have told me that the moon was made of cheese id have believed just to see my man...

[Pairofboots in reply to Dogsabighelp]

I understand where you are coming from, and the need to see your son I can understand. I just feel devastated for you and your son that this placement offered so much, but appears to be so bad.

From what you initially said the care seems to be beyond bad, when it was meant to be the way to progress.

I wish I could make it all right for you after the battle's you had to previous face.

If there is anything I can help with you know that you can contact me x

[New_beginning in reply to Dogsabighelp]

I've just gone on cqc.org.uk. right at the bottom left hand side says Give feedback but link to Make a Complaint give the bigger picture of what you and your son have experienced and what you observed. Stuff going through internally, it appears they keep all in house.

If you can Copy and paste your complaint onto word document with a letter and send to your sons GP for records. I would send letter to the hospital your son was cared for, as they will lead on his care pathway.

I dont know what else to suggest, but this is too much for you alone now, too much I'm frustrated for you.

[ored13]

Oh this sounds all too familiar. As you may know we had an awful time at the rehab unit. They were meant to be brilliant. We were so relieved he was there, he felt safe...why has nobody communicated with us... it's been 4 weeks...6 weeks, 3 months. Why is he saying that he had been abandoned in on the toilet with nobody to help him for ages? A member of staff has taken a disliking to him and is not treating him very well. We only received information from my husband and it was limited because of his speech. Made contact with the clinical coordinator, only so much you can take... They have a trusted role and don't feel I they can be trusted anymore etc.

That hospital was hell. Centre for brain injury indeed. It put our family through all sorts of hell and many mind games, and I'm glad he's out of there.

I've not posted in a while, because he's home and we're finding our feet. But I won't forget what that hospital put us all through. Never. Look up a

The clinical coordinator and complain... Phone the main switchboard. Speak to your local MP. Where are his clothes?????! They could just be in the wash, but all hospitals have some sort of generic wear. Why not just say it before visit my Or would a quick phone call asking you to bring in a few items have hurt??Disgraceful!!!!

How are things today?

[Dogsabighelp in reply to ored13]

i honestly have no words and cant stop crying

[ored13 in reply to Dogsabighelp]

What is the latest? Have things improved at all? I won't say "chin up" because nobody's chin is going up in this sort of a situation it's just flipping awful and the feeling of helplessness is all consuming.

[ored13 in reply to Dogsabighelp]

Some days are crying days.

[New_beginning in reply to ored13]

Yes I dont think it goes D with crying, book app with GP if you dont visit.