Hi there, i am new to this site and am hoping you may be able to help.

[mustcarryon]

I had a stroke 2 years ago, my mobility, speech and vision are fine. I was left with brain damage and a rare condition called visual agnosia. It is a very frustrating condition and if there is anyone out there it would good to talk.

[HungryHufflepuff]

I don’t have that condition,so this is not a helpful reply, but just wanted to say hello and welcome

[mustcarryon in reply to HungryHufflepuff]

Thank you so much HungryHufflepuff. It's very kind of you to welcome me to the site

[cat3]

Hi Mustcarryon and welcome. After Googling Agnosia I immediately recalled a book by the neurologist Oliver Sacks, the first chapter of which was entitled 'The Man Who Mistook His Wife For A Hat'. This described a patient with that very condition.

I read the book 30years ago and, as it was borrowed and never returned, I can no longer refer to it and can't remember details of therapy or outcome. But if you phone the Headway helpline, staff there will be happy to help you in understanding the condition and can supply you with printouts on the subject of object blindness.

Please phone the helpline on freephone 0808 800 2244 during office hours, and stay around to chat with forum members for extra support.

Hope to see you around. Cat x

[mustcarryon in reply to cat3]

Hi Cat 3. Thank you so much for your reply. if i may explain. W-Ton has the most fantastic stroke aftercare. Even after 2 years i still have an OT and a Stroke specialist supporting me. They are both aware of this condition, although the one said that in over 30 years she has only known about 10 patients with the condition. I am looking for others with the same. There are no others in the west mids: . It's very difficult to explain. It has taken a long time for me to write this reply, considering i did creative and professional writing at uni: i can't process words properly, my spelling and sentence structure is all over the place, i have to get everything checked. If i cross a road i can't make out if traffic is moving or stationary. That's just a couple of things and it becomes a very scary world out there. I know the book you are on about and it sounds very interesting. I did buy one A case study of visual agnosia. i had it about 12 months ago , i manage to pick up a small paragraph or a few sentences as i can. i have tried audio books but fall asleep (fatigue)

I joined the stroke forum a few days ago and asked the same question, someone suggested Headway, i am so grateful to that person. I am going to phone the support line next week.

I will let you know how i get on.

thank you so very much.

x

[cat3 in reply to mustcarryon]

Look forward to hearing how you get on with Headway. See you later ! x

[cat3 in reply to cat3]

PS...meant to say well done in putting your posts together..... x

[mustcarryon in reply to cat3]

Thank you so very much

x

[mustcarryon in reply to cat3]

Hi cat3

Bringing you up to date. i phoned Headway a couple of days ago, the lady i spoke to was so helpful. She hadn't heard of my condition, i told her my story including the negative and sarcastic remarks i have to sometimes put up with. I know i am certainly not on my own and other people with brain damage have issues to contend with. This lady said i should have a Headway id card that explains what is wrong. She is sending me a form out. she also gave me a number of a Headway support group in the next town to me. i phone them and spoke to the out reach manager, who again was very kind, she couldn't identify anyone with the same condition but said with brain damage people can have the same problems. It's so good to know there are so many supportive people out there.

i will catch up with you soon. Thanks. x

[cat3 in reply to mustcarryon]

Wow, it must be an isolating feeling at times knowing your condition is so rare. I do feel for you having to struggle with such difficult issues without the benefit of full empathy.

But, so far as possible, you'll find support and friendship here on Headway. And well done for speaking with Headway and arranging for an ID card. Hope to see you again soon m'love.... 😏 x

[mustcarryon in reply to cat3]

I know when i hear such wonderful support that i am at the right place. Thank you so much. Catch up soon

xx