I think I have tinnitus could this be linked to the TBI does anybody know? This strange high buzzing sound in the ear of the side of my head injury started happening last night I thought it was a noise in the room and just managed to fall asleep but I’m sitting in complete silence and it isn’t going away it’s horrible has anyone experienced this please
Also I have been laying in bed trying to fall asleep and my leg moves on it’s own I’ve looked it up and I think it says spasms also happens to my fingers it’s so strange and scary
Any help and advice would be greatly appreciated
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Maybe book app for GP, which they will make referral into ENT. When did TBI happen, has it just come on. My husband has it constantly, its been jotted down from brain injury team but nothing occurred yet.
I have scar tissue on my right thalamus and cerebral peduncle. I have twitching fingers on my left hand, and my forearm feels like someone is pulling on all the muscles and tendons. The same goes for my left calf. The only good thing to come out of my neurology appointment was that it was confirmed as spasticity and spasms.
As for the tinnitus I also started having this at the same time and my hearing is actually fine. You can get a free hearing test at Boots. It could be some kind of auditory hallucination, I'm yet to get the answer myself. Definitely speak to your doctor or neurologist, if you have a good one (unlike me). Hopefully you'll get the correct referrals to ensure theres nothing else going on. If only to put your mind at ease.
I had a terrible neurologist who said fatigue is just a feeling of tiredness and go back to your gp if you're that bothered. Needless to say I'm waiting for a new neurologist. I have so many unconfirmed things going on, its unbelievable. I really hope you get the answers your looking for and I hope this helps a bit.
As Marnie says, speak to headway they are amazing. All the best.
I have tinnitus and very much sounds like you do too. It’s always worse in the quiet and when I lie down. Some people listen to music and I think there are apps that help. I am used to it and just try to ignore it as much as possible. I get nerve pain and numbness like pins and needles in my fingers and sometimes down my side. Amitriptyline has helped with migraines and nerve pain, but not the numbness. Worth seeing your GP. I have been to the tinnitus clinic and they offered advice and gave me some peace of mind. Hang in, as I sit here I can hear the noise in my head - but it’s okay. Now it’s not bothering me, I think I just accept it.
Tinnitus can be as a result of TBI, but it can equally be a side effect of medication. It's worth just asking you Dr.
Leg jumping, could be due to a spasm, but again equally can happen when over tired, I get this, I change position, seem to work for me. Think of it like if you have ever sat in a really boring lesson, meeting on a hot stuffy day. You can feel your eyes closing, and you fight it, but eventually you jump, realising that you have missed what was being said.
In some cases leg jumping can be a little more problematic, this is called restless leg syndrome, but let's see if maybe trying to sleep in a different position before looking into this. If the problem persists then it's another chat with the doc.
I have tinnitus in my left ear which like you was my injured side my dr referred me to ent it took 8 months for appt but was well worth it the specialist said it was my brain causing the constant buzzing within 3 weeks I had a little hearing aid made to dull the tinnitus and improve my hearing make tv easier to hear and it's great its barely visible and while I wear it no tinnitus it great ,ask your dr to recommend a referral to ent
Hi, I thought it might be worth mentioning I had Hydrocephalus which was operated on in 2009 and left me with Tinnitus a buzzing in my left ear I have had all checks done and nothing can explain I just live with it white noise helps but Good Luck you may be able to find a solution from a neurologist.
They will know it has happened, if awake, I know, well I've been told by my ex wife that I can kick pretty well when asleep.
But seriously, they may feel that it is about to happen, but be unable to stop it happening. I get no warning, it is quite painful, because all the muscles fight against each other, but it is a sure sign I need to sleep.
If it is RLS, then it can be like torture, because there is no way of relieving the tension. A sleep clinic would need to diagnose this. Sometimes medication can help, but some people never find relief.
If it is from fatigue, then just shifting position can help, but ultimately it's the need to sleep.
Obviously in a car, some people sleep, others just hit the cusp of sleep, having some water or a couple of jelly baby's can give a little boost. Often we can get dehydrated when traveling, because we don't drink or eat as we might in other situations. Also open a window, blows the cobb webs away, but it changes the air in the car. Try not to use the heater on cold days, as this makes the car stuffy, and leads to restlessness (don't let the windows steam up).
Hope this gives some ideas, just shout if there is anything else.
Yea it comes on after brain injury in some people. I had a tbi in 2009 and i also have tinnitus constantly as a result of the tbi you get used to it and thers no cure.my dr prescribed cinnarizine to try and it makes it more bearable but doesn't take it away ul get used to it
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please help
Yet more un helpful, non specific doctors comment 
The not knowing
