Shaking from fatigue after traumatic subarachnoid hemorrhage

[Chelt83]

Is this common? I feel really weak in my hands and legs and obviously gets a hell of a lot worse if I do anything physical. When I do slightly too much (hoovering, lifting etc) i shake uncontrollably and have to lie down and eat before it stops.

[Irmina1983]

Hi Chelot. I had and still have same thing. Shaking all the time. Have no energy at all.

[RecoveringH]

My guess is your vitamin B levels are way down. Multi B supplement twice per day should improve within a week. Add a magnesium for relaxation for the muscles. When nerves are on end, muscles tighten.

[cat3]

Do you have a nourishing diet Chelt ? Your comment about the shaking and weakness being relieved by rest and food is suggestive of hypoglycemia and I wonder whether your symptoms been investigated recently.

Perhaps you need to ask for a comprehensive health review from your GP with a complete blood count to identify any possible cause of your ill health such as defects and deficiencies quite unrelated to the SAH .

Of course it is possible that your issues are the result of SAH damage. Mine was 7+ years ago and when I exceed my capabilities I do still suffer with shaking, weakness of limbs, nausea etc., and I'm utterly incapacitated for days.

But when I developed certain symptoms last year and assumed they were more of the same, but later learned they were heart issues, it was a reminder that, although most of my malaise is probably Bi related, it's not automatically always the case.

See your GP Chelt ; it might just reveal something treatable at last..... I hope so. Cat x

[Chelt83 in reply to cat3]

Hi Cat, I did go though a period of testing my blood sugar and it's all fine. I have a very healthy and balanced diet. I have spoke to my GP every couple of months over the phone when I have to get sick notes and they never seem to think anything is an issue. I haven't actually seen them since Jan, a month after it happened. I've kind of given up on them, they have been really dismissive.

[cat3 in reply to Chelt83]

I'm afraid being left to cope alone is the 'norm' where aftercare for Bi is concerned. I spent 8 weeks in hospital after passing out in the early hours with a SAH which involved coiling and 2 month's physio/occupational therapy. A month later I saw my GP about (what transpired was) a gall bladder issue requiring surgery : she was looking at my notes but didn't even asked how I was getting on.

A year on I was still constantly over-heating, dizzy and weak, along with the catalogue of standard Bi after-effects, so I asked for a referral back to the neuro team and (though it was a 6 month wait) I finally got to see my wonderful consultant who arranged all manner of tests (ENT, Endocrinology, EEG and MRI, but more importantly he talked at length about the 'whys and wherefores' of Bi after-effects ; so all-in-all very reassuring, and with self-referral appointments if/when needed.

It's usually a case of tests coming back negative, but with the relief that they're 'normal' after-effects. But he'd been adamant that certain symptoms weren't connected to the SAH and he was spot on, resulting in tests & diagnosis of a heart problem and subsequent treatment.

What you're experiencing is probably the classic fall-out from the SAH but, if you feel you need extra reassurance, please get a referral back to the neuro specialists. Good luck in whatever you choose to do m'dear. Cat x

[Hidden]

That's normal, try not to do to much( but knowing what too much is, is impossible). Just slow down things will improve with time.

[Chelt83 in reply to Hidden]

The weird thing is, it happend in December and the shaking got worse over time. I don't do too much and pretty much shake all the time anyway, it just gets worse when I do try to do anything. I still have regular rest breaks and when I do anything physical I may sure I do it in stages.

[WinB]

I do not remember much after my SAH, but see Doc and put your own mind at ease Chelt and if he is none the wiser, ask to see specialist. Ease of mind is a good thing as you will sit there saying to self "Whats happening to me and so on. Been their had pains in head and worried myself silly so get it checked out as stress is not good for us and life is full of stress. Wishing you all the best xxxx