I am the husband of Tracey who had a aneurysm - Headway

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I am the husband of Tracey who had a aneurysm

parvualexandru profile image
17 Replies

Hi everyone my name is Alexandru. I am the husband of Tracey who had a aneurysm rupture and she had a operation to clip the aneurysm and had a drain in the head . After 3 weeks was discharged from hospital but still very week and suffering with pain , disoriented, and slightly confused. She feels better but the muscles loss is having a tell on her. She have loads of tablets for stomach and I don't understand why. Was operated in head and she have more tablets for stomach. She have a eye who the nerve was affected and can't open.

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parvualexandru profile image
parvualexandru
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17 Replies
cat3 profile image
cat3

Hi Alexandru. Can you tell us how long ago your wife had the clipping done and what, if any, medication she's now taking ? Cat x

parvualexandru profile image
parvualexandru in reply to cat3

She had the operation on 4 Jan 2019.

parvualexandru profile image
parvualexandru in reply to parvualexandru

Medication is more for stomach and antisicknes

cat3 profile image
cat3 in reply to parvualexandru

OK so very recent. A bleed will leave behind many issues including headaches, dizziness, emotional lability and memory issues, to name just a few. But at the point your wife has reached I was still hospitalised and barely cognitive, so she might be overdoing things..

It's a time for waiting and resting for your lady whilst her brain adapts to its new status. An injured brain usually causes confusion and leaves us with permanent changes which we need to recognise and learn to manage over the first 2-3 years.

So plenty of rest for your wife to keep from brain overload (she might be irritable if faced with too much noise or other stimulus). It's a learning process for the patient and partners/loved ones which needs tolerance on both sides.

I know that urinary problems are commonplace but not sure why she would need anti-sickness tablets other than from a migraine problem or to counteract effects from other drugs such as anticoagulants. Maybe others will be more familiar with this issue ; I hope so.

Best wishes to you both for better days ahead.

Cat x

parvualexandru profile image
parvualexandru

Thanks for your help. Means a lot for me

WinB profile image
WinB in reply to parvualexandru

Hi Parvual,

Try and give her some actimel when tablet time comes around might coat her tummy and help when she takes pills, also we need to drink water when had a TBI/SAH etc . Brain needs it and no stress xxxx I couldn't stop stress so I sing it helps me only!! xx

Kavib profile image
Kavib

Hi there, it’s going to be a long recovery process but be patient and with support it will work out. Please see my YouTube videos which I did to help others understand from hospital to recovery :

youtu.be/qM7qgw79k_o

youtu.be/7V5ESdgSnrU

Beegal6 profile image
Beegal6

I am sorry for all your wife and you have been through with her health issues. I had a clipping with no rupture. I had nausea and increased reflux issues from the pain medication, so I needed to have some extra stomach meds for a bit.

Beegal6 profile image
Beegal6

And the blood thinners and precautionary seizure meds.

Kathykathy1 profile image
Kathykathy1

I had a ruptured aneurysm and it is a long journey with many issues. I did not really take on board just how complex and far reaching the symptoms would be. We are all different but for me it has taken 3 years to see subtle things returning like a little more motivated, less self loathing, more patience, calmer, more energy, recently started a stroke exercise class, less head pains, less pressure in head etc, this is not a condition a plaster can fix. It is a new way of life. I feel to have spent most of the 3 years resting because everything over whelmed me. A long the journey progress will be made but then you will feel it's very slow, and feel to keep taking a step back. Guided visualisations have been invaluable to me to relax, remain positive, and de stress. I have learnt to walk, talk, think and try to forge new brain pathways it has taken alot of work and time. Good luck.

steve55 profile image
steve55

the tablets you say are for the stomache maybe for something else. im on a tablet thats for depression but i have adhd, it helps me to concentrate my blood pressure was aproblem so i was put on water tablets which also brings down blood pressure, so you see medication for 1 thing can actually be used for another.

my advice would be to go and see your gp and get him to explain it to you my friend.

Gaia_rising profile image
Gaia_rising

Hello, parvualexandru

The hospital really ought to have given you advice about the medication Tracey was prescribed, I expect that, like me, she 'slipped through the net' with regard to discharge and aftercare planning.

After my haemorrhage, I was sent home with Paracetamol and Codeine for the pain, as well as Nimodipine as a short-term medication to reduce the risk of vasospasm seizures, and Lansoprazole 'to protect my stomach.' Lansoprazole inhibits the production of stomach acids, it was prescribed to reduce the risk of ulceration from the rest of the chemical cocktail I was on. (Also Senna and Lactulose prescribed, as codeine use can lead to constipation.)

I'd suggest contacting the hospital that Tracey was treated at, and ask for an appointment with someone to explain both the medications, and the next steps, it's likely that referrals to the Consultant overseeing Tracey's case, and your local rehabilitation centre are already 'in the system', but we, as patients, generally don't know about them until the appointment letter comes in the post.

The initial weeks and months after such complex surgery are a very steep learning curve for all concerned, but you don't have to do it all alone. This forum contains a wealth of knowledge from people who have 'been there', but each individual responds differently to brain injury, there's no one-size-fits-all, and there certainly aren't any 'quick fixes.'

You can contact Headway by telephone or email for advice/support/guidance, they'll be able to connect you to any local support that's available.

Welcome to this strange new world, it will change, it will keep changing, it might never be 'the same' as your old world, but help is available.

parvualexandru profile image
parvualexandru

Thanks for advice . I contacted her GP and explained the tablets and she is on the case and will keep a eye on it. I will have a meeting with Headway. All is going in right direction.

eileenleach profile image
eileenleach in reply to parvualexandru

I had two brain anyeursms didn’t rupture though luckily n both were clipped that was nearly 5 years ago n I recover week apart from ending up with chronic fatiguex

parvualexandru profile image
parvualexandru

What is your impression about CBD oil as recovering medication from a anurism rupture? I understand is very good for brain.

shaunmcg profile image
shaunmcg

I’ve been using it for a year and it has helped immensely with my recovery from TBI three years ago. Tests have shown it helps. I also smoke cannabis which helps too in a different way. Lots of research being done now!

bobbybobb profile image
bobbybobb

My aneurysm was coiled, it didn't rupture. The day after surgery I started to suffer with severe migraine and memory problems which I had never had before, ever. I had a recent review from my Neurosurgeon, he said it was coincidental. I don't believe for one minute it's coincidental. Even though the surgery went well. how they said I would be, Isn't how I am in the real world. I hope your wife makes a good recovery but be aware it might take longer than anticipated and some problems may remain long term.

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