Bad day

[Shon48]

I know my huge aneurysm (28mm)which hopefully has been tamed with the 17coils , artery occluded and a stent in June then a further stent placed in September that it is early doors for me to be feeling better. I am feeling bad today and in bed with a headache, sore neck and the face numb again . Can’t eat because of taste buds rotten so have lost loads of weight . I can walk a little with the aid of a walker but I’m so fed up . Has anybody got any words to make me feel that I’m going to be better in time . Don’t want pity , I just want to know if I’m going to feel better in time . Thank-you with fingers crossed that this isn’t going to be my life from now on .

Shona 🤗🏴󠁧󠁢󠁳󠁣󠁴󠁿

[magdolna]

Yes it is my experience, after 27 months that physically I do feel better. So just give it all the time you need and practise/rewire your brain to do what you think you can't.

I never believed I would ever be well again. Things will never be the same again and I still do wish I was the 'old me' occasionally.

KEEP ON KEEPING ON!

[Shon48 in reply to magdolna]

Thank you 🙏 I realise I will never be the same person and I know it’s really too soon to be expecting big things . Did you have the woozy , dizziness too? X

[June2018 in reply to Shon48]

Hi my partner feels the same as you do keeps saying will I ever be the same person I was did you suffer with blurry vision

[Shon48 in reply to June2018]

I still have bad vision , wear a patch but it’s annoying . Just blurry in the one eye where the numbness is . Does he have the wooziness too . Holding me back as I can’t focus too well .

Shona

[June2018 in reply to Shon48]

No she doesn't have wooziness just blurred vision dose it clear on its own

[Shon48 in reply to June2018]

Only when I’m really tired or if I’m being pushed round a supermarket . I’m very dizzy all the time .

[SAH-survivor]

Hi Shona

It is so hard to believe but it WILL get better. I am 100 days post coiling today and I didn’t have a huge aneurysm like you as well as so many coils. I had a ruptured 7mm and had only 4 coils. I can empathise completely with the staying in bed days with a headache and sore neck but try to perservere. It aounds to me you are still lucky as your vision and reat of body are ok and you are able to write this post! It is so hard to focus on the positive but train your brain to do that. I was a person that lived in the fast lane and have really struggled slowing down. I hope you feel better soon. I will pray for you. X

[Shon48 in reply to SAH-survivor]

Thank you so much you have given me hope . I find it very difficult having things done for me but I’m learning . It’s just since the second procedure that I’m so dizzy but it was a procedure that doesn’t have many reports on it so I suppose I’m a lucky woman to still be here . Hopeful the two stents will correct the beast . At least I’ll be helping fellow sufferers as I’m being used for teaching purposes. Fingers crossed 🤞

Thanks again 🤗🏴󠁧󠁢󠁳󠁣󠁴󠁿

[SAH-survivor in reply to Shon48]

Hi again

No need to thank. You are absolutely right in that you are so so lucky to be a survivor. Just build your strength - physical and emotional. Focus on who u were before this, this will help psychologically. Happy days!