Feeling alone

[371960]

Hi I was diagnosed with a condition called SREAT in October 2016, i would like to share stories with others that have suffered an abi kath x

[steve55]

i am not a number i am a woman eh kath? im steve. have you been to a headway monthly meeting? if not why not?

[371960 in reply to steve55]

Hi Steve I am a number as when I came to join the group today, it would not let me use the name it said try numbers..and it worked lol.....yes I have had very good input from headway, home visits to start with, I also had the neurophycology testing done at headway...I wasn't aware of monthly meetings..but would find them difficult to get to, as I am not driving far at the moment, and it's around a 20mile drive.....

[cat3]

Hi Kath and welcome. I had a brain haemorrhage 6 years ago and Headway has been a great source of support and reassurance.

Maybe you could give some more details of your issues and how they affect you day to day ? Look forward to seeing you again soon m'dear. Cat x

[371960 in reply to cat3]

Hi Cat, im sorry that you have gone through this....i only joined this group yesterday..so it may take me a while to get used to how it all works lol....my problems are mainly cognition issues, I have made massive progress, but have been told that I now have to adjust my life to who I am now, and not who I was, as anymore progress is limited if any....I have short term memory loss, little concentration/ attention..can't retain information etc..I have just been medically retired...yes Headway have been a fantastic help, and I know if ever I needed them they are at the end of the phone Kath x

[cat3 in reply to 371960]

I'm sorry you've had the misfortune to join us Kath but I hope you'll feel welcome here. The key phrase here is 'The New You' ....................it's something everyone struggles with initially.

Striving to return to familiarity is instinctive, so letting that go and adapting to the 'new' normal takes time ; I got there in around 3 years and though life nowadays is very different to my earlier life, it's pretty much ok !

It really is all about the passage of time dimming memories of who we were and what we aspired to (akin to grieving I believe) then picking up new threads and seeing where they lead. And I've found it easier with the support of folks here !

See you later Kath........... xx

[371960 in reply to cat3]

Bless you Cat..you are so right..I'm about 19months diagnosed with this cruel disease, I'm getting there but it's so hard. I have lost my confidence with my driving, have just been medically retiered..so many changes to my life..I feel like I'm becoming a recluse..I feel I have no purpose at the moment, but as time goes on I'm going to be looking into doing some local charity work, to get me out and about. I'm still coming to terms with everything that has happened over this past 19months.Thank you for your kind words kath x

[steve55 in reply to 371960]

my wife says im still struggling to come to terms that im a different me, but i have.

[371960 in reply to steve55]

I'm sorry Steve, it was Sept/Oct 2016 that I was diagnosed with SREAT ..and I don't think I will ever get used to the new me..my husband also says that I have changed, we are all now suffering with the consiquences, and impact it has had on us...we are all warriors x

[Elenor3]

Hi and welcome

[371960]

Hi Elenor, I'm new to the group still finding my way around how the group works. Lovely to chat with people in similar circumstances to myself. Hope to chat soon with you kath x