Sleeping siezure

[Faisal514]

Hi i had brain injury about 8years ago that took me to coma for almost a month. Since then i start having sleeping siezures went to doctor he gave me medicine (topamax 25mg) but time to time i get sleeping siezure is there any way it can be stop and i can live a normal life thanks

[steve55]

how do you know youre having a sleeping seizure ?

[Faisal514 in reply to steve55]

My family they found out when i had my 1st siezure

[Faisal514 in reply to Faisal514]

So now whenever i have sleeping siezure they r there and they tell me whenever i get up and i also know that it happend coz when i wokeup my head so heavy

[steve55]

anything else

[Faisal514 in reply to steve55]

Is there any way i can stop ? Coz before my head injury i was normal this all started after

[steve55 in reply to Faisal514]

i used to have sleep seizures, i knew when id had one because id wet the bed.

[Faisal514 in reply to steve55]

Ya somtime i wakeup with wet bed also thats y everynyt before i sleep i pee 1st then i sleep

[Faisal514]

I just wana live normal life after my accident it started other things r fine

[Faisal514]

I am 31 years old now and i am still facing this sleeping siezures please help me to get rid of it thanks

[cat3]

Faisal, this is a medical matter and none of us here have the expertise to advise you on treatment for seizures.

Please see your GP and, if necessary, ask for a referral for further neurological investigation.

Good luck with getting this sorted. Cat.

[Faisal514 in reply to cat3]

Thanks

[ARoxy22]

There are many other meds for seizures and 25 mg may be too low. Ask your dr. Also of course there is research about cannabis oil helping.

[Faisal514 in reply to ARoxy22]

Ya but m takin 25mg 2 tablets in morning and 2 in evening

[sealiphone in reply to Faisal514]

If you have a look on the Epilepsy Society site:epilepsysociety.org.uk/topi....

Topamax, trade name for Topiramate is often prescribed in higher dosage than you're currently on, so have a talk with your GP.

I'm on Mirtazapine 250mg per day and I'm fine, however during a period when I was under extreme stress I was having night time seizures, I only knew this because I was biting my tongue whilst asleep. My GP ddin't up my dosage as once the stress had reduced my night time seizures stopped.

[Faisal514 in reply to sealiphone]

So u mean to say u stop havin siezures with the medicine u r taking ? Can u tell me how long u r facing this and how it happend plz thanks

[sealiphone in reply to Faisal514]

I started with seizures 2 years after my TBI, apparently this is very common due to the scaring on the brain

Seizure free now, I've been epileptic since 2004, started on 200mg Mirtazapine, then stabalised on 250mg after about 3 months.

I was on 250mg during the period of my night seizures these lasted for around 3 months but that's me you definitely need to discus your dosage with your GP.

[Faisal514 in reply to sealiphone]

I discuss with many GP the problem here they r not good they dont give you right treatment my last neuro he gave me 8 different tablets when i start taking them i cant even talk properly cant walk straight just sleeping only now this neuro gave me this topamax 25mg so with this m bit fine but time to time m havin sleeping siezures. So i dont know what to do now

[sealiphone in reply to Faisal514]

I'm very fortunate being well controlled and I don't get the common tiredness side effect of the Mirtazapine.

However I know people who's seizures can't be controlled at all, one colleague I work with can have up to 15 grand mal seizures per week

[Faisal514 in reply to sealiphone]

Ill check another neuro and ill ask him about the medicine u told me lets see hope for the best thanks

[steve55 in reply to Faisal514]

youre always going to have seizures, so the sooner you come to terms with it the better.

im on topiramate but my neurologist is eventually going to take off them and put me on something else.

[Faisal514 in reply to steve55]

Let me know what is that and how is it plz thanks

[Faisal514 in reply to steve55]

But m just asking one question to all my nuro that before my accident i was fine then why now i cant be a normal person i cant live siezure free life.

[David2019]

I know as I’ve got personal EXPERIENCE in having BI &seizures that just started about a YEAR AFTER my BI I used to take sleeping seizures but now I’m on 500 mg levetiteracetam or lepta morning & night for LIFE, I’ve been sezuire free for 3years now, I hope that I’ve spelt that right lol. I go to see a neurologist nurse whom prescribed me medication &everything seems to be working.

Get in touch with your gp &see if there’s a SPECIALIST that you can go &see maybes get the dose upped. Take cars &speak later.

David 👍

[Faisal514 in reply to David2019]

Thanks i really need to find some better neuro here

[steve55]

just out of interest who prescribed them? usually they say...............see how you get on with those...........it can take a while before you find something that suits you.

[Faisal514]

My neuro prescribed me this before he gave me some other medicine which dosent suits me i forgot the name of it i had to take 3 capsule at night before sleep then he change to this topamax 25 mg which is 2 tablet in morning and 2 in evening.