scary times

[princess1518]

hi all I am Margaret my husband has so many symptoms and they change constantly no pattern he was a bit better then has dipped dramatically again I am so frightened he stumbles is disorientated has absences just need to chat thanks

[Hidden]

Hi Margaret,

It's so difficult when there are many different symptoms, it's hard to keep track on what's needed at any particular time. Has your husband had a brain injury? Mine has these 'absences' too and it is very frustrating trying to get through to them, isn't it. Message me if you ever need to chat, we can't make things better on this forum, but it helps so much to know that you are not alone, others have the same problems.

Jan

[Hidden]

Hi,

The inconsistency of the recovery is really difficult to deal with.

[princess1518 in reply to Hidden]

thanks so much as johns symptoms come on so quick its difficult to do this we have no help from anyone they think he may have louie body dementia and parkinsons

[Hidden]

Sounds tough. Are there forums similar to this one on health unlocked for those two things? They could be going through similar things. I know that we are far more likely to suffer from these after a BI so perhaps there is another carer on here that is already going through this that could help you. Fingers crossed.x

alzheimers.org.uk/info/2000...

dementiauk.org/sources-of-s...

[princess1518]

there is a headway near us but I take panic attacks so I don't know what I would do sometimes he is just so ill he cant go out he goes back to his bed a lot awful to say but as he has his short term memory loss he doesn't remember how his day was its up and down my emotions are over the place then I feel so guilty if I watch tv or phone someone I love chatting thanks for your help

[Elenor3]

I'm so sorry for your difficult situation. Have you registered as his carer? There are carers organisations all over the country who may be sake to offers you some additional support. Try asking your GP surgery if you can't find your local group. Wishing you the best with your search for answers, and sending you a hug x

[princess1518]

hi elenor yes I am his carer I don't keep well either so its me getting to places I am not a good mixer and I cant leave john thanks anyway