Intraventricular hemorrhage anybody?: Hi all I've... - Headway

Headway

10,848 members13,069 posts

Intraventricular hemorrhage anybody?

6 Replies

Hi all I've just joined and introducing myself I'm an incredibly lucky mum to two amazing 3 year old identical twin boys who unfortunately both suffered brain hemorrhages at birth, been a long journey to where they are now but I have very high hopes for them in spite of the huge challenges still ahead! Hoping to connect with others affected by similar challenges ☺

6 Replies
StrawberryCream profile image
StrawberryCream

Hi twin mummy.

Your little ones have been through so much but you sound like a strong mummy, loving them to bits.

On here it is mostly adults with acquired brain injuries or people caring for their children or a partner who have a brain injury but not from birth. I am wondering if you would find more help and other parents with similar situations to yours with the Child Brain Injury Trust - wwwchildbraininjurytrust.org.uk

Best wishes

in reply toStrawberryCream

Yeah think you're right probably more adults here, I thought there might be parents on here but maybe children's trust is where most are, thanks ☺ have to say can still relate to alot of what people say here though as brain injury effects are present regardless of being one year old or 100 years old and it's interesting to see longterm what my kids may face 👍

StrawberryCream profile image
StrawberryCream in reply to

You are so right in saying that brain injury can affect anyone similarly regardless of age. However, I am not aware of any parents on here that have little ones that had bleeds at birth. I think you are right with trying to link with parents in a similar situation as your little ones which is why I suggested the Child brain injury trust.

❤ thank you

lcd8 profile image
lcd8

Oh no, so sorry to hear about your boys Twinmummy. I was in danger of a ventricular haemorrhage at age 14. They caught it just in time luckily for me. I have had a VP shunt since. Do your boys have this?

lcd8 profile image
lcd8

ps I was born with my problems but they didn't present until puberty.

Not what you're looking for?

You may also like...

Sandra's Brain Hemorrhage

Hello thanks for having me in your group, a month ago my wife suffered a brain hemorrhage, em her...
Miguetorre profile image

Room 23 - surviving a Brain hemorrhage

Whooohooo! Look what’s arrived! This has made my day and I have the biggest smile ever! Can’t wait...
Kavib profile image

Leg pain after Subarachnoid hemorrhage

HiOut of the blue 10 days ago I had what I now know is called a Thunder Clap headache Admitted...
Aquawhite profile image

Room 23 - surviving a Brain Hemorrhage

This Friday Im sharing one of my videos (on Instagram and Twitter) that hasn’t been seen before....
Kavib profile image

Shaking from fatigue after traumatic subarachnoid hemorrhage

Is this common? I feel really weak in my hands and legs and obviously gets a hell of a lot worse if...
Chelt83 profile image

Moderation team

headwayuk profile image
headwayukPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.