Increased tone: So my left side has increased tone... - Headway

Headway

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Increased tone

sidekickpete profile image
6 Replies

So my left side has increased tone, which makes it hard to move and coordinate. My arm feels heavy. I can use it, but it is such an effort. I am doing lots of varied movements/activities.

It feels as if I've been given a robot arm which hasn't been switched on.

I am just wondering if this heaviness goes away?

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sidekickpete profile image
sidekickpete
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6 Replies
angelite profile image
angelite

Hi Pete,

Has your neurologist diagnosed you with spasticity or hypertonia ? Angela x

sidekickpete profile image
sidekickpete in reply to angelite

I haven't been diagnosed with anything..? ( I don't think)

angelite profile image
angelite in reply to sidekickpete

Have you seen a physiotherapist Pete ?

sidekickpete profile image
sidekickpete in reply to angelite

Yeah I've had a few months of physio. My arm is definitely better than it was.

It just still seems to be heavy and dull.. I was just wondering if that ever goes away..?

Sem2011 profile image
Sem2011

If physio helped, I would ask to be referred back, and perhaps a neurophysio. Have you seen a neurologist and given a diagnosis? I suffered TBI 5 1/2 years ago. I suffer with left sided, weakness, nerve pain, spascitity and yes, my left side is 'heavier'. My physio in the community was rubbish, and in hindsight I would have persisted for more physio. It is the chicken or the egg, if you do too much you bust and boome, and I can end up in bed for a few days, or if you sit around your muscles become stiffer and weaker. I wish I had been advised of pacing , and which exercises to help improve the tone and improve weakness etc on the bad side. I have started yoga, which has helped,but sometimes it worsens my physical symptoms. I find it hard to manage my exercise /daily life. I am finding it particularly hard ar the moment with the dark mornings , cold and motivation to get out and do things, but then I have had flu over Xmas.

How long ago did you have your BI?

sidekickpete profile image
sidekickpete in reply to Sem2011

Hi.

Thanks for your reply. It was March 2016.

I have been going to yoga, etc. I'm just not feeling like it has changed much recently and I'm worried that this is how it's going to be from now on.. :(

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