Since hitting my head I've not ventured out to any of my normal gigs! I'm feeling a lot better now, not 100% but getting there.. Still get headaches and tinitus.
I'm just a bit nervous in case I have a funny turn or it triggers any of the post concussion symptoms I had.
It's been 6 months now..
Anyone else felt like this?
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louisele50
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15 Replies
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Good on you Louise, enjoy your first night out! Set yourself a sensible time to call it a night. Just in case it gets overwhelming, have a plan in place in case you need to go home earlier than expected.😀Claire xx
Thank you Clare, I'm intending to stay for a couple of hours as I don't want to over do it!! I've got a headache today so hoping it will go before tomorrow night!! xxx
Good to see you're managing to push your boundaries more Louise. And each time you accomplish another move towards normality the more empowered & confident you'll become.
I stretched my boundary pretty much to its limit today & I'm now shattered but, having turned a challenging plan into a reality, it opens up all kinds of other possibilities !
I felt exactly like this for a long time. I have done a video blog only 15mins long about my recovery to be able to reach out and help others. Please try and watch if you can and hopefully this will help.
I've made some steps along the way but it will be the noise and flashing lights that I'm worried about.. You have done well, really good video blog, thank you for sharing this with me. xxx
I found going out difficult for quite a while, especially if there was too much noise and I needed to speak or listen to people. When you say gigs, I presume you mean music, as funnily enough if that was what I was going to listen to and all I had to focus on and I could sit down, I was ok. I didn't have tinnitus though.
Yep, been there, bought the gig t shirt. I'm twenty years in and still get concerned, but it wont stop me. I wont lie, it took a very long time to get to that stage however. Take pain relief before the gig, find the nearest exit should you need it, or even talk to the event, you may be able to get specialised treatment if you insist for long enough that you have special needs.
But don't let it stop you, you'll only regret it later
Yes I think your feelings are normal compared to other posts on the forum for PCS. I wear earplugs anywhere where there's Iiabke to be intrusive sounds......restaurants with tiled or wooden floors, town centres, trains and buses. It makes life a lot easier
I understand your worries about things going wrong in public. But it's worth the initial effort - the more you go out and start experiencing 'normal' lifestyle situations - the easier it gets. It does take a while, but keeps persevering till you get there. I had a terrible time a while back with going out in public but it's improving daily now a year on. Well either it's improving or I'm getting used to the new way of being, but it doesn't matter which.......I'm not trapped in the house anymore so it's worth the effort.
Get yourself some earplugs and keep them in your pocket in case you need them. and go for it. x
louise what sort of funny turn? i suffer from vertigo and ive also been diagnosed with epilepsy. i go out weekend daytime with my wife, i know it sounds sad but i feel safe
Yes felt just the same and don't go out much now in the evening, can't handle noise and loads of people. Well done in your progress and good luck with going out. Nick Xx
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