Neuro yesterday: Hi everyone, Jules here. Anyone... - Headway

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Neuro yesterday

Julesgettingthere profile image

Hi everyone, Jules here.

Anyone awake, had another therapy session yesterday (Monday) - still awake, so it still feels like it wasn just earlier today. Just wanted to say I went and it was so difficult.

Anyway, hope you are all ok

Jules

x

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Julesgettingthere profile image
Julesgettingthere
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11 Replies
Jaec profile image
Jaec

I have had therapy sessions several times after my tbi. Each time helped in a different way but all were extremely hard and exhausting at the beginning. Stick with it, it will help in time. I also found mindfulness very helpful

Jaec X

Julesgettingthere profile image
Julesgettingthere in reply to Jaec

Hello Jaec

Its my 3rd with this gentleman, and yes, each one has been different for me too so far.

Yes, we were trying some Mindfulness (i have tried before) but it concentrates on a persons breath and breathing and i cant do that yet, it makes me feel very distressed.

Thank you for replying to my post, I fell asleep on and off from about 8am so sorry for delay in reply.

Hope you are doing ok. Are you better than you were in the past ? I mean, are you coping better with life ? dont reply if thats too upsetting a question, its ok. sorry.

Jules

x

Jaec profile image
Jaec in reply to Julesgettingthere

Hi Jules

I had a brain Haemorrage nearly 30 years ago when I was 15 years old. I nearly died, but after two 10 HR operations the malformation was removed. I expected to recover and eventually to get back to the way things were before but this did not happen.

However, although it has been a long road, with plenty of ups and downs I feel my life is pretty good. Yes, I had to leave school, I have a very bad short term memory, Aquired dyslexia and epilepsy, I have to work at staying calm and not going down the depression route but I am married, I have two great kids who are very understanding, I managed to eventually get my qualifications in art and design and in Social Care and now do art with young adults with learning disabilities and brain injuries.

I have had help along the way from Neurologists, counsellors, a psychotherapist and a cbt/mindfulness therapist. I have done courses in Art therapy and counselling and this has given me a better insight and understanding. There have been times when I have felt there was no point in going on but luckily I have always found someone eventually who has listened and helped. The Brain Injury Team were amazing.

Keep in touch, if there is anything I can do, let me know.

Jaec

Julesgettingthere profile image
Julesgettingthere in reply to Jaec

Hello Jaec

Thank you so much for telling me that, words are powerful things and yours have given me inspiration.

I hope one day I can help another person as much.

Jules

x

moo196 profile image
moo196

Hugs x

Julesgettingthere profile image
Julesgettingthere in reply to moo196

Hello there Moo.

That little cross ('X') says a million words doesn't it - thank you.

Hugs

jules

x

cat3 profile image
cat3

Hi Jules. A therapist once told me that if it isn't painful...........it isn't working ! Stick with it girl ; you're obviously touching on some pretty emotive stuff.

Sorry but I can't help comparing dark thoughts & feelings to a nasty virus, and the therapy as an emetic which, after the unpleasant vomiting, clears your system of all the poison.

Hope you'll settle a bit when you finally have some sleep. Love Cat xxx

Hello there Cat

You are so right about clearing the system of a virus - but i cant help but feel like some kind of green alien when i am trying to talk to him. My head keeps asking me if i really need to hear any more revelations about the 'me' that is now. Does that make sense ?

Eventually got to sleep at 8am - awake again since 9.30 am. But feel better.

Sun has just come out here - hope the sun is shining on your new plants too.

Kind regards

Jules

x

cat3 profile image
cat3 in reply to Julesgettingthere

Yes Jules.............had a loooooong day gardening today in the sunshine, so absolutely shattered now ! but in a good way.

I'm so pleased that you're sticking with the 'programme' despite the emotional difficulties and doubts. Try not to analyse too much or judge the process.

I like to think I'm always right, but always happy to be proved wrong if it's to my benefit !

I've actually noticed a change of tone in your comments today ; less stressed & more coherent. Could it be ...................??

xxx

Julesgettingthere profile image
Julesgettingthere in reply to cat3

Hi Cat

Yes, I feel a bit different.

Did you see my post i just sent about the lady and the letter ?

Great about the gardening. I am spending a little time out of the house in the garden recently. I have a very of aluminium milk churn thing (about 3 ft tall) and am polishing it up. Its getting quite a shine. I plan to put a sticker of a black and white cow on it and put it in the kitchen.

I feel very distant from everybody today, like i need to stretch out and say hello. So hello.... hope you are ok.

Kind regards

Jules

x

cat3 profile image
cat3 in reply to Julesgettingthere

No I couldn't access the lady doctor's letter ; didn't quite know where to start.

But it's nice to see you're renovating things rather than 'modifying' them ; the milk churn sounds really quaint.

You definitely sound more upbeat since the therapy ............... maybe slightly manic though ? I worry about you having another mishap, but from the way you describe your latest project maybe things are looking up ??

Stay calm m'dear ................. I'm keeping an eye on you. :o

Fingers crossed though that things will keep getting better & better for you. Lotsoflove xxx

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