Tough stuff.....

[CindyBurton10]

Hello, my brain injury friends. I do hope you are all enjoying this warm weekend. I'm here in South Yorkshire and it's warm and nice. Me and hubby today have done lots of gardening.

But my brain injury friends....I'm so fed up up of not being able to go out by myself. I read about you guys going out driving.. Going on holidays. Even just going for a walk. And it's tough oh so tough, cos I can't go beyond my garden without hubby's help. We have had to have a gate built up around the house so I can cope. It's all about noise, distraction and my brain injury. Hey ho but lifes good but at times not so.

Hope you guys understand take care 😃

[RogerCMerriman]

Sounds nice, the gardening.

I don't really remeber folks back stories, looking at your other post I assume aneurysm? And damage from that?

Reading your post sounds like sound sensitivity/over stimulation? I suspect people post the successes rather than all the failures?

I'm waiting for sleep take me, at my cousins wedding admitted defeat around 9pm was just too tired and every thing was just too much.

[CindyBurton10 in reply to RogerCMerriman]

Hi Roger, I had a brain haemorrhage 9 years ago. The cause of the B.H. was an AVM (Arterivenous Malformation) based in the cerrabellum part of my brain. The haemorrhage was so severe I nearly lost my life.

Whilst gardening today my neighbour (who I didn't see) said "hello Joanne" and I screamed so loud I frightened him and me. I apologised but was quite upset inside, but didn't show it. But it's so difficult because to look at me first impressions are I do look ok. It's just the hidden disabilities that cause the problems.

Anyway! Post B.I. I do lead a very happy and fulfilling life 😃

Hope you managed a good snooze Roger......😴

[Elenor3 in reply to CindyBurton10]

Hi Cindy I'm so sorry to hear that. Nine years is a very long time to not have independence.......I've only just been 'allowed out' alone in recent months after a spell where I had to be 'taken out' , so I had a tiny tiny taste of what you have - but not nine years now wunder your fed up with it. I presume you wear headphones when you go out? I've just bought some cos I'm hoping to go back to work this year. Are there any supported groups in your area which would be appropriate for you to attend without your husband? I feel sure you'll have already explored everything. Not sure if you have a headway group in your area? I'm hoping to join my local one very soon.

I feel sorry for myself having lost my driving licence, but I feel lucky that I'm able to go for walks. It seems so unfair on you not able to get out at all on your own. Sending you a big hug xx

[CindyBurton10 in reply to Elenor3]

Hi Elenor,

Life for me pre brain injury was....Working a 40 + hour week. Running Loss prevention for 600 shops and two very big head offices. Meetings here there and everywhere. Running a home and all that that entails. Looking after my hubby and son.

I led a very hectic life and my nickname was flash.....

I'm not particularly proud of the way I was pre injuries. And it took a life changing bleed to open new doors....

So post bleed I do sometimes feel sorry for myself because I can't go out alone at all ever, not even to the shops which is literally 2 mins away. Not able to drive....and loss of independence.....but hey ho!!!!

And its a big BUT life has given me a lot of new and interesting hobbies/adventures. I definitely wouldn't have done any of these pre bleed because I was too busy leading a busy, mad, must do this and that and the rest 🙄🙄🙄🙄🙄

Feeling sorry for myself only happens sometimes...

Take care Elenor 😃

[cat3]

Oh Jo, I'm so sorry you're feeling so trapped. It's difficult for most of us, but worse still for some.

I 'bit the bullet' at bank holiday and took the car up the motorway (with a pal) to York. It was hair-raising and exhilarating in equal measures, but it was really too far as an experiment !

I was shattered when we got back home, in fact despite being a scaredy-cat passenger, my pal had to drive home from Harrogate ; I was completely exhausted.

Maybe it's a confidence issue for me, which might improve with practice and, who knows, I might even get to meet up with you sometime after all !

Love, Cat xxx

[CindyBurton10 in reply to cat3]

Hi Cat,

Brave girl you driving....yes! maybe too far for your first adventure, but good on you for giving it a go 👍

I've just been feeling sorry for myself 😜 and It doesn't happen often thankfully.

I have a good life with a brain injury.....it could be worse, and it could be better, but it ain't bad just different as you well know.

You getting to Doncaster maybe a stretch too far. The next time me and hubby get to the Trafford Centre I'll give you a shout ☕️ and 🍰 on me (That's of course if you're near the Trafford centre)

Take care good lady 👌

[cat3 in reply to CindyBurton10]

That would be just brilliant Jo ; thanks for a really do-able alternative !

It just happens that John Lewis does the finest carrot cake I've ever tasted so, I insist, the cake will be on me.

Look forward to it ........................ xxx

[Flumptious]

(Sorry, but the mention of Yorkshire makes me think of caves. I met my husband through the university caving club, and we are still members of a club near Ingleton. We even got married in the Dales, many years ago, and we will be there for a club do, in a few weeks).

I go out by myself (and I am back at work), but I certainly can't drive - my TBI has made me 'blind' (the quote marks are because I can see, but I have half the field-of-view missing, so I am officially blind. It is silly to call me 'blind', but hey, we get a discount off the TV licence, cheaper train fares, and free bus travel. )

[CindyBurton10]

Hi Flumpious,

I'm in Doncaster, South Yorkshire. But we do venture up to the Dales or near the Dales a couple of times a year....Oxenhope North Yorkshire.(near to ILKKEY) We hire a cottage and enjoy the countryside.... Caving is a very brave venture and something me and hubby just don't understand...maybe I'm confusing caving with pot holing, or are they the same. (Excuse my ignorance)

I can't work because of my seen and hidden disabilities. I've tried 3 volunteering jobs but they haven't worked out, because of too much pressure on myself and hubby. Gardening is a joy for me/us now.

Take care 😃

[MXman]

H candy, I understand problems with noise. Certain noises can get me every time, busy places and lots of talking the hum of noise I can't handle. Could before bi but can't now. Hope you have a good evening. Nick xx

[CindyBurton10]

Thanks Nick, have a good evening too☀️👌😃