There is such a lack of information and families have to find so much out for themselves. My husband now suffers epilepsy following his tbi and its only by chance I discovered he is exempt from paying for his lifelong medication (surely GP should tell you this?). A few months later through epilepsy website I discovered he can get free bus travel (while unable to drive) and qualifies for a Disabled Persons Railcard! I'm sure if we all got together we could create a comprehensive guide for families!!!