T.V

[thepiercy]

Hi, While in Belfast earlier this year i recorded an interview with NVTV. I talk about my injury, my show and my job. You might be interested in seeing it here. nvtv.co.uk/shows/behind-the...

James

[StrawberryCream]

Thanks James I have just watched and listened. It's great what you are doing as it informs and educates about BI.

[barny1]

Thanks, it's really great what you're doing, getting the message out to younger people who are most vulnerable, especially young males who can become reckless and put themselves at risk of having a brain injury.

I once created a 3d model of my skull and brain using some open source software and my MRI scan, it was really cool to be able to see the skull dents and fracture lines. And I saw a video of the developers creating a chocolate brain model from an MRI scan. MRI scans are great for fine detail, but I'd really like to see my brain in 3d. It be great to have a model, whenever the need arises, I could take it out of my pocket and give people a mini lecture they didn't ask for.

[Hidden in reply to barny1]

I made 3D of my skull, neck, spine and hips = well it might be me, not sure how much my images been fiddled with.

And a 3D of my face = weird/fun, shame about, what's word? can't remember: bits of corruption on scan = maybe from my metal crown ?

But NO idea other than from net = what's where, how should be etc. = I'm NOT an expert! I just know I hurt, loads.

But YES: a 3D of our brains = that'd be GREAT. Anyone doing that? Who where cost?

[Hidden]

I'll go look now = unless banned (like BBC) coz not in UK or my old PC not up to date/can't. ?

[iforget]

Really interesting...a nice mix of technical and personal - you are very articulate and easy to listen to. Thanks for sharing.

[angelite]

Thoroughly enjoyed this.Informative,humorous,honest,fascinating ! : )

[Hidden]

Thanks James very interesting to listen to . You seem to have a very in depth knowledge of the brain yet explain it well

[sporan]

Hi James,

Brilliant interview and so well explained. I am so glad that you were able to bring this issue further into the public eye.

I particularly liked your referencing to thing people without BI take for granted and as 'small' things such as the weekly shop, a killer for me, and the whole thing about the fatigue side. I now have been told to plan in regular 'do absolutely nothing, not even relaxation excercise, breaks through the day, neuropsyc recommends 3 x 15 min as a base line and 4 x 15 as an ideal but during this first phase allowing me as few as 2 for barest minimum. Sounds back to front but ever since I left school at 16 (I'm now nearly 60) I've been used to working 50-60+ hours a week with irregular starts and finishes plus playing/rehearsing in bands etc. at evenings, weekends out with wife etc. to nothing virtually overnight, something I'm finding very hard to adjust to.

Also you spoke about the mood, stress, depression and anxiety aspects that are caused not by outside pressure but simply from the physical injury to the pathways in the brain, something others without BI find hard to understand with comments like "You look well, your alive, don't fret about it so much. Your worring too much about it".

In my case I have a low grade diffuse tumour in the left medial temporal lobe, which because it's diffuse and in the wrong place makes surgery non viable. Fortunately it's been stable in appearance now for about 3 years although there have been gradual deteriorations in speech, language memory and the epilepsy caused by it.

Sorry for the rambling, but I often do that with writing because speech can be difficult, not so much in the clarity, although there is quite a bit of start, start, start, repetition of first part of the same word, but because of seeing the words spinning through my brain that miraculously vanish when I want them to come out the old cake hole.

Good luck for the future and once again thank you for being sobrilliant at explaining the issue.

Geoff.

[paxo05]

Hi james

At last someone who puts things in real words. As well as cracking up at some ofthe medical terms ( why dont they realise the humour or is it our bi causing us to see this).

Explaining mood swing so well. How quick they can change still catches me out.

Do you ever get accused of being FINE , just because you can articulate. I have , and even started ( stupidly) to believe it until I got in a complete mess. I t does pee me off that although we live with a bi we shouldnt be able to describe how it feels/effects us.

Surely if anyone is qualified to speak about bi it is someone who has one. I thought I had seen this interview before but looking through my phone ( for something unrelated ) realisex a friend in northern ireland had sent me a clip of it. Thanks again for giving us a voice, hope you all the best.

[angelite in reply to paxo05]

I have just ' realised ' that the letter 'd' is a little too close on the keyboard to 'x' for comfort ! : )) x

[paxo05 in reply to angelite]

Oopps angelite...just noticed that myself. Thats what happens when usuing your phone for this forum. Small keys big fingers doesnt help.....ohh plus my spelling isnt great anyway. Makes for interesting posts if nothing else.

[RecoveringH]

Thanks for sharing James, hope your kids know what a fantastic dad they have.

Best.

[Nks425]

Really enjoyed the interview. I would love get a 3D of my brain. I believe I am going to speak with my doctors about that. I saw a show in the U.S. earlier this a young lady had an AVM they found it before it burst had surgery and came out looking all beautiful and no problems. I know they kinda have to do things like that but once I would like them to show it really is. Thank you for doing that! I am 2 years on April 25 post AVM burst. I call it the day my head blew up.

Slowly but surely getting back.

Niyani

[StaceM8]

As everyone seems to agree, fantastic James but why am I the only one to have recommended it ???

Anyway brilliant James. Have U been through any depression at all James ???

(I assume not as it wasn't mentioned in the interview (unless I missed that bit - memory & concentration not as good as it used to be ;o)

Stace

[thepiercy]

Thanks for the kind words everybody. It has been hugely important and helpful for me to do these talks about my TBI and hearing that it is useful for other people too is a real bonus!. Please do feel free to share the link to the video, it should remain online for a long time

James

[Elkay_1954]

Very enjoyable. Just the thing I would do if given half the chance. Have an incredible thirst for knowledge about 'all things brain' since my sons severe brain injury 16 months ago. My son not in a position to spread the word himself yet - but I'm sure will in the future!

Lynne

[Hidden]

HUGE CONGRATS to you and what you do!!! I've tried to think/write ideas for presentation but SO difficult = think impossible for me so I KNOW how hard work it is = hats off to you big-time.

The versions I could access either had no sound or a terrible attempt at subtitles! Wish they all had good choice of subtitles, transcripts of different sorts and in different file options, sign language, translations etc. = everything accessible to everyone, in our dreams huh!

Maybe if I keep trying/learning I could one day do what you do = with the right HELP!

Am struggling with (trying to get appropriate, no delay, near where I live, quality, info & choice) the very basics (food, healthcare, housing, benefits, transport, mobile phone) at mo and in BAD pain = exhausting. And FAIL. Too difficult without HELP.

All the best.

[miracleman]

Hi Skipper, "You might be interested in seeing it here."?

Alternatively you may be blown away by it, I was, the replies seem to have summed it up, I don't need to add anything, but I will add my thanks to to those of others, THANK YOU, EXCELLENT, IMHO!

[Nutkin33]

So awesome! I really enjoyed it. One day, I would like to tell others about my experience, and try and educate others to a new level of acceptance and understanding about brain injuries!

😀😊😉