NICE guidelines

[thepiercy]

Today NICE published updated clinical guidance on head injury. The 2003 and 2007 guidelines made a real difference to treatment, especially the call for fast scanning after admission.

You can read a summary and find the guidelines here

nice.org.uk/newsroom/news/T...

[SAMBS]

Having read a lot of the article by NICE, especially the part dealing with Social care, it is heartwarming to see that Head Injuries and their effects are at long last being taken more seriously with some good proposals, even if it will still be 2015 before some studies are completed and start to be put into effect. Lets hope the GP's will also read and take notice of the guidelines more quickly.

Given so many of the posts here on Headway by people still suffering from many neurological effects several years afterwards, lets hope NICE will also commission long term studies as well. Whilst immediate treatment for a head/brain injury is of course essential, so is the treatment, care and help needed several months or years after the event for the neurological problems that have arisen. This is of course only my personal opinion I have no professional standing, but it is formed from months and months of reading posts and tragic stories from many of the contributers and their families over many months now, virtually all of of which are so very much worse than my own experiences and which we all handle in our own ways. Well done Headway for bringing yet another important item to our attention - NICE - Keep up the Good Work - no pun intended.

[spartan300 in reply to SAMBS]

that's why they call it the hidden disability, you look ok so you must be, the truth is local GP's and others in the medical services don't know what to do or how to treat someone with brain damage and related injuries, I got mine from a vaccination which has led to more confusion , which leaves me and many others in space where nobody hears you scream.

[vjones2 in reply to SAMBS]

how could i get on any trail im not ol id like some sort life vjones

[Hidden]

The NHS would do better by dropping all cosmetic stuff, getting shot of NICE and employing homegrown staff who know what the word 'accountability' means.

They also need to control the health tourists [making them pay up front] and charge the wasters who come into A&E brainless through drugs and alcohol as well as dropping the post code lottery for certain treatments.

Probably save money by dropping a lot of these managerial posts ... think 'Incontinence Management' here.

[vjones2 in reply to Hidden]

post code thing that was my big problem i posted about me

[Hidden]

Is this a little bit of light at the end of a very dark, long tunnel? I would really like to think that this report may make a difference to all those with 'neuro conditions' who have been left out in the cold for far too long. The cynic in me hopes that it is not just another report which sits on the shelf gathering dust!

[thepiercy]

Afraid that it wont make much if any difference to those already suffering. The guidelines specifically didn't look at long term rehab. Hope fully this will come under another tranche of work. But it wont be left on a shelf and will affect the next generation and should improve treatment and outcomes for those who have injuries. The guidelines review research to find out the most clinically and cost effective treatment and pathways and to keep practice consistent across the U.K.

[headwayuk Partner Headway in reply to thepiercy]

Hi skipper53,

Many thanks for raising this important new document. You can read Headway's response to this at headway.org.uk/news/headway...

You might be interested in the new head injury quality standard that NICE are developing, due to be released towards the end of this year. This new guidance will cover the early management, but also include rehabilitation. At the moment it is in the very early stages so there isn't much detail at all, but you can keep up-to-date with the progress at guidance.nice.org.uk/QSD/74...

We will be providing input through the consultation process as this progresses, so it is very good to hear the opinions of our members.

Best wishes,

Headway

[SAMBS]

just read the 4 replies so far and understand comments from the different viewpoints but I remember the daya when NICE didn't exist and there have been some improvements in health guidelines and practises since then, and perhaps Headway will forward a lot of our comments from various post (no names mentioned at the moment) to someone in the NICE organisation!

[vjones2 in reply to SAMBS]

we can only hope peoplr in nice see this as all of us are suffering in 1 wayi got no hope for me everyone now ie seen says i was left to long before and left to long after im lef as i am thats it and if id been 15miles with a liverpool area pot code id had tratment quick and id had rehab after i got nothing left 9 days no scan with a sah, if my mind could focuse long enough youd have page on what they did and SAY not do im alone need care carnt afford it tho

[SAMBS]

Hi Spartan 300 et al -

I have sent a longer reply to all replies via Skipper53. Agree with the "nobody hears you screaming comment especially" perhaps that why we all bang our heads on brick walls when it comes to trying to get help and support from 'supposed brain injury medical specialists'

[vjones2]

about time does anyone think 9 days is to long for a sah took them 9 days and it was my sister phoning her brother inlaw a gp who asked her told her what say doin local hospital i got scan by next morning was moved then to neuro hospital the neuro hospital couldnt belive i was still alive they had lt work to do then but i did hve a stroke ad brain stroke not just symptoms after operation what would nice lie to say on 9 days no scan and worst pain on earth good job i dont rember allas all will no im a mess im typing 1 handed but head pain never endsive had no brain o phyisical rehab as the neuro hospital had to send me back to wales and there is no help well 2010 none at all so im left alone in a mess carnt cope with most of normal things id be on any trail to try get bit better nice needs to look at this sending you back to other hospital from the euro hospital if they carnt dont help no one i hope no 1 goes threw what i did have been threw v jones