homozygous, so I have the 2 copies fo... - Haemochromatosis ...

Haemochromatosis Society UK

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homozygous, so I have the 2 copies for H63D. I’ve had a thought 💭

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I’m homozygous/have the 2 copies for H63D. I’ve have higher ferritin levels over past 7/8 years ranges from circa 180 upto 380 at times. I found out as hubby bought me a Family history genetic test as a present and it included health DNA results. For years & prior to the genetic test & since, I have been in poor health with many various symptoms but the worst debilitation are the varying areas of body pain, chronic fatigue, skin issues, Tinnitus etc etc etc. I’ve a working Rheumatologist diagnosis of Fibromyalgia (& CFS/ME). Treatment is painkillers and low dose antidepressants to curb symptoms & help me sleep. This year in Jan 24 after sleep study, I’ve added severe obstructive sleep apnea & have to sleep with a full face C-PAP mask. I was stopping breathing on average 45.5 times per hour 😲. I thought that would be the reason behind all my symptoms & over time I would get better. I haven’t really noticed any improvement & i religiously use my CPAP machine. So, once I got the H638D double gene results, Also, blood type “O RH Negative” & 78% genetically Irish/Scottish, so def Celtic Blood. I took the results to GP. She referred it to Heptology Team for a look. They said GP to monitor Ferritin levels annually to see if increasing. That was it. I am now wondering if I should be asking for an actual face to face meeting with Specialist Team. My health & various symptoms are getting more severe & I cannot work anymore. Years ago, before Fibromyalgia,CFS, H683D known I had an abdominal scan for general pain, results mentioned in passing, some NAFLD & reflective something or other. Nothing happened with that.

Also, I seem to be a human barometer these days, the changes in weather have some correlation to the severity of my symptoms. So, my thoughts are, mercury is used in barometers & it’s a liquid metal. So , could in theory, people with higher ferritin also,an iron &meta in blood/liquid form react to the changes in atmospheric pressure?

Could the earth’s magnetic pull make joints hurt more intensely, increase stomach issues, increase brain fog, headaches, increase chronic fatigue/lethargy symptoms? I know, I am likely going to make some of you laugh at this 🤭

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