What do you think about my blood resu... - Graves Disease Su...

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What do you think about my blood results ?

Mhymer profile image
13 Replies

I got a phone call from my GP receptionist today about my bloods my results were

TSH 4.97 n/r 0.30-4.50

T3 4.5 n/r 3.1-6.8

T4 12.8 n/r 11.0-22.0

The receptionist said I need to have blood again in six months. I was really shocked because I feel so tired all the time and my joints are so painful, I have a appointment with the Endocrinologist in December and hopefully she can explain why I feel like this. What do you guys think about my test results?

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Mhymer
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13 Replies
Lora7again profile image
Lora7again

I think your results are terrible ... what dose are you taking at the moment?

When I was overdosed on PTU my TSH was 9 and I could hardly get out of bed.

Mhymer profile image
Mhymer in reply to Lora7again

Am not on anything at the moment, I was hyper last year and had RAI treatment before Xmas, and ever since then it’s got gradually worse, the COVID hasn’t helped, but for my GP to say wait six months to repeat my bloods is what shocked me

Lora7again profile image
Lora7again in reply to Mhymer

What? I cannot believe what I am reading you need starting on Levothyroxine now.

Mhymer profile image
Mhymer in reply to Lora7again

I really thought they would have this time, with my last bloods they said I was close to going under and to wait for my next blood test, and the members on this forum were saying I needed to be on levothyroxine then

Lora7again profile image
Lora7again in reply to Mhymer

You are already getting symptoms of being hypo so you need treating now. The longer you leave it the longer it will take to regain your health I'm afraid.

Lora7again profile image
Lora7again

Just to add I would not wait until December you need some treatment now. Can you contact your Endocrinologist and ask him about it?

Mhymer profile image
Mhymer in reply to Lora7again

Am hoping they will have been sent a copy of my results, so I think if I don’t here from her in the next week or so I will, these bloods were taken two weeks ago and because there was a hold on all blood test from the government , I only got my results today, and I feel worse this week than two weeks ago, I don’t know if it can change that quickly or it just apart of it , my brain fog is really bad to.

Lora7again profile image
Lora7again in reply to Mhymer

Don't delay contacting her and telling her how ill you feel. You know this will get worse the longer you leave it. I sort of gave up for a couple of years when my levels were very low and Elaine Moore advised me what to do. Have you put your results on her site and asked her about them?

elaine-moore.com/

Mhymer profile image
Mhymer in reply to Lora7again

No I haven’t, I will give it a go

Lora7again profile image
Lora7again in reply to Mhymer

She had RAI so she will be able to advise you better than I can.

pennyannie profile image
pennyannie

Hey there gain ;

RAI treatment is a toxic substance that slowly burns out and disables your thyroid in situ :

There is no discussion, you will need to supplement with thyroid hormone replacement after this treatment, and you will become hypothyroid as your gland is destroyed and becomes non productive.

Your results clearly indicate the need for T4 Levothyroxine supplementation, and the longer your doctor leaves you without medication the more ill you will become.

Is there another doctor at your surgery who may understand the consequences of RAI treatment and start prescribing the T4 thyroid hormone replacement ?

Mhymer profile image
Mhymer in reply to pennyannie

Hi there, am not sure, I’m hoping that my Endocrinologist will see my results and get in touch 🤞if she doesn’t am gonna get back in touch with them, I can’t continue like I am , I already have a stressful job at the moment working in a care home because of the Covid, it just feel drained all the time and on my days off I just want to sleep

pennyannie profile image
pennyannie in reply to Mhymer

Hey there

I know that feeling very well as I've been there too :

Why not contact the endocrinologist yourself, today :

My thinking is that you need to become your own best advocate, and start the ball rolling for yourself : unless you ask, you'll be left until December - in the " long grass " when " all of a sudden " it's your turn to be " looked at ' -

You are hypothyroid now - and need a prescription :

Please, I know it may not be in your nature to do this, but start annoying the endo - your results are now hypo, it'll just take the endo a minute to put things right for you and then. in December, you'll have a review of the dose and discuss how better you feel and if a further increase in T4 is required.

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