Posts - Gorlin Syndrome Group | HealthUnlocked

Gorlin Syndrome Group

All posts for May 2012

This years sees the 20th Anninversy of the Gorlin Syndrome Group

How times flies! It's hard to believe that the group has now exist...
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Who confirmed your diagnosis?

What specialist did you have to consult to confirm your diagnosis?
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Kindly do not abuse this site.

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What tests, if any, did you undergo to confirm Gorlin Syndrome?

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Are you the first in the family with Gorlin Syndrome or is there a family history of the condition?

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Is your medical care for Gorlin Syndrome managed well or do you feel it is disjointed?

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How long did it take for you to receive diagnosis of Gorlin Syndrome?

How long did it take from first presenting with symptoms to being diagnosed with...
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Gorlin Syndrome Group Community

This is a place where you can log things. You might be asking yourself, "What ki...

Welcome to the Gorlin Syndrome Group

This community area provides a space where you can share your experience, suppor...
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