What specialist did you have to consult to confirm your diagnosis?
Who confirmed your diagnosis? - Gorlin Syndrome G...
Who confirmed your diagnosis?
M.D. Anderson, Houston Texas
My Clinical Geneticist at the age of 15, following numerous operations for Jaw Cysts.
I was clinically diagnosed at age 11 when i had my first and only bout of jaw cysts. Have also had it further confirmed through blood tests by geneticists
My geneticist at age 40 following mant BCC treatments and removal ovarian fibroma
James cook hospital Geneticist at the age of 11 after 1st jaw cyst . very nice man ...
I was unaware of any signs until age 38 being tested by U.N.M.C. genetecist DR. Bruce Buehler. had 4 cysts removed ouch!was painful . Although he confirmed it, I never would've known had it ben for the oral maxillofacial dentist/Dr. Michael Schnayder.Thanx DOC, wherever U R now
genetics dr at Mayo Clinic in Rochester MN
My Son's paeditrician first suspected something and then the Genetics Team from Cardiff clarified it.
I went to a dermatologist when i was 25 with small sores on my back, which turned out to be BCC's . After many were removed he admitted me and had scans of head,chest,jaws done. At the moment I have just pitting on hands and feet and have around 8 BCC taken off each year..
Thanks for all your responses, a very mixed range of specialities and ages when diagnosis confirmed.