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Gorlin Syndrome Group

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Moderation of Social Media Wesbites

Gorlin Syndrome Group has set up a number of social media platforms, including HealthUnlocked, Facebook and Macmillan to provide general information about what...

Gorlin Syndrome Group has set up a number of social media platforms, including H...

•10 years ago

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Gorlin Syndrome Group Survey findings to be published shortly

The results of the Gorlin Syndrome survey will be published early to mid July 2013. Currently the data is being finalised but I can confirm that there has...

The results of the Gorlin Syndrome survey will be published early to mid July 20...

•11 years ago

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Gorlin Syndrome Survey - closing date 3rd May 2013

There is still time to participate in the on-line survey but hurry closing date is 3rd May 2013. Read on for more information. The Gorlin Syndrome Group UK,...

There is still time to participate in the on-line survey but hurry closing date ...

•11 years ago

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Gorlin Syndrome Group Patient Conference

The above event is due to take place at the Novotel, Broad Street, Birmingham on Saturday, 3rd November 2012. We have a range of healthcare professionals with...

The above event is due to take place at the Novotel, Broad Street, Birmingham on...

•12 years ago

Setting a location

Don't forget to set your location, it can be done by going to the 'Find people near you' link on home page. This gives an indication of people near you and...

Don't forget to set your location, it can be done by going to the 'Find people n...

•12 years ago

20th Anniversary Patient Conference - 3rd November 2012

Gorlin Syndrome Group website updated with details of the Patient Conference 2012. For further information visit the website for or follow this link...

Gorlin Syndrome Group website updated with details of the Patient Conference 201...

•12 years ago

Gorlin Syndrome patient and Trustee of the Gorlin Syndrome Group Sally Webster in the news.

Trustee of the Gorlin Syndrome Group Sally Webster was interviewed by the Manchester Evening News last week in relation to new developments in the treatment of...

Trustee of the Gorlin Syndrome Group Sally Webster was interviewed by the Manche...

•12 years ago

This years sees the 20th Anninversy of the Gorlin Syndrome Group

How times flies! It's hard to believe that the group has now existed for 20 years. Set up in 1992 by my late husband Jim, assisted by Professor...

How times flies! It's hard to believe that the group has now exist...

•12 years ago

Kindly do not abuse this site.

The site will be monitored and any inapproriate content will be removed. Please respect other users and ensure that all postings relate directly to Gorlin...

The site will be monitored and any inapproriate content will be removed. Pleas...

•12 years ago

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Gorlin Syndrome Group Community

This is a place where you can log things. You might be asking yourself, "What kind of things?". It can be anything relating to how Gorlin Syndrome affects your...

This is a place where you can log things. You might be asking yourself, "What ki...

•12 years ago

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Welcome to the Gorlin Syndrome Group

This community area provides a space where you can share your experience, support one another, and become better informed about Gorlin Syndrome. Feel free...

This community area provides a space where you can share your experience, suppor...

•12 years ago

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All things Gorlin Syndrome Group(14)

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