How well do you feel your condition w... - Gorlin Syndrome G...

Gorlin Syndrome Group

How well do you feel your condition was managed over the last year?

•13 years ago•20 Voters

Please select all that apply:

Not at all well managedNot well managedWell managedVery well managed

2 Replies

•

duck12 years ago

I feel it is me who has to push and educate the medical services as no one knows much at all about gorlin , though we are just starting on the road and this may change with time and when we are better known by them

tinytinapepper11 years ago

Yes you have to let people know about this very up coming medical condition to the UK and the whole would as well as the medical people and half the teacher s people dont know what it like for the younger ones or they family lets hope a break full for it sooner than later

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