What post diagnosis support do you / your child/ partner receive from your hospital?

[FionaGFG]

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In Australia nothing. All information comes via the coeliac society.

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I have an annual check up, I have had a second biopsy and I have had an MRI bone density scan and am going to have another one next year.

The one really reassuring thing is they always say how obvious it is by my appearance and blood tests that I rigorously stick to my diet, which I find very encouraging.

But if you were diagnosed at the main BRI in Bristol they have no follow up for coeliac so I consider my self lucky to have been diagnosed at Southmead hosp Bristol.

[jennyann]

Nothing, absolutely sod all In 2007 Consultant said" we see by your gastroscopy you have coeliac disease, we will make you an appointment to see a dietitian and have a bone scan goodbye". One visit with dietitian some literature and a bone scan and that was it. I read in amazement other peoples readings of their conditions at clinics and i have not a clue what they are talking about. I am on the plus side very well and follow my gluten free diet very carefully, i have once heard of a Coeliac support meeting which i went to it was great . I would love someone to send for me and say lets do your bloods and get you another bone scan but it just does not seem to be the way in my trust.