Hi gfgs' , I know I am being a pain but I need some more of your expert advice before I see the consultant next Monday. I have had blood tests for cd which were negative on two separate occasions in the last 5yrs,Hb,ferritin,calcium,urea and electrolytes all normal and no vitamin deficiencies. Endoscopy showed villous atrophy not sure if this is partial or complete but Dr said it was reversible. Have had indigestion for years but am always rushing around working and with a very sporty family. Problems only started in May 2012 when on holiday in Spain( upper central abdo pain radiating thru to back under ribs and to the right,nausea ,frequent soft stools and feeling really unwell). Went to Spanish clinic all bloods normal except neutrophils raised. Had ultrasound which was normal. Stool specimens sent for guirdia and salmonella and guess what all negative. Have just spoken to consultants secretary to make sure all results back because I hate to get to the hospital to be told to come back when the Dr has got the results and she told me that the results for HLA DQ2 and 8 are negative. I was sure that they would be positive! CT scan also normal. Had a course of antibiotics in Spain as Dr there thought I had stomach infection.
I am managing well on the gf diet but am struggling to put on some weight after loosing 1 1/2 stone. I feel less depressed but after being really strict and cutting out the gluten and having lacto free stuff my guts don't feel much different . Bowels fine and don't feel sick anymore. still have abdo pain.
I feel that I have to get to the bottom of this as my twin sons were born prematurely and the youngest had his ascending, transverse and descending colon removed when he was one week old. He has short bowel syndrome and manages really well on no medication just high carb and high calorie diet. My boys are 19 now and going to uni in September. I am worried sick if they might have cd.
What do you think with my test results being as they are and what would you ask the consultant ?
I know you are all really knowledgeable and you have been really helpful to me in the last few months. Thank you