Nervous system problems

[penelope2]

Hi, is there anyone with CD or a gluten sensitivity that has or been left with problems with their nervous system or balance.

Maybe even a diagnosis of cerebellar ataxia by a neurologist?

It would be really good to find someone with the similar problems that i have.

Thank you.

[SabaAK]

Hi Penelope. I do have some neurological problems like tingling hands,feet,buzzing ears. Weird sensation on my fingertips and toe tips sometimes. But i feel it gets better after vitamins intake,especially B-12 and B complex. I was diagnosed last year and at that time all my vitamin levels were extremely low and anemia with very low ferritin level. I was told that deficiency of those key vitamins like From B family especially B1 and magnesium cause neurological problems including ataxia. Have you checked your vitamin and iron levels?

Saba

[Praga]

If you are celiac, it is frecuent to have vitamin b12 deficiency. I would recommend checking your vit b12 before taking any supplement.

[Hidden]

Gluten gives me nerve pain and issues in my hands and feet, and temporarily makes my speech a bit funny, and balance wonky, but tends to resolve after the gluten reaction subsides. I did have nerve conduction test in my hands which show all is ok, but I do sometimes feel I lack the dexterity in my fingers that I use to have. If the issue is not resolving for you, perhaps gluten still sneaking into your diet somewhere? As always, best to get professional input.

[Smartdoc]

hello i have several symptoms, neurological, and GI. I was diagnosed Parkinsons-but wandering wether its all actually gluten related-find unless I avoid several different food stuffs I have trouble walking,paraesthesia in hands,right sided abdo pain,tinnitus and vertigo-urinary urgency ,and frequency. I have to avoid albumin ,gluten,soya and dairy-my family history is peppered with several different gluten related/auto immune/disorders that improve following gluten removal.

[Smartdoc in reply to Smartdoc]

ps-I have been recently referred to Sheffield ataxia centre,I asked my Parkinsons consultant to do this.I researched before hand myself-much more research definitely needed.

[penelope2 in reply to Smartdoc]

Hi,Yes you sound much like me. We are all different and gluten will bring on slightly different symptoms if sensitive to it.

But digestive, nerve endings in extremities, brain fog, walking and balance, speech and maybe other problems, can be brought on by gluten.

Sheffield ataxia clinic have told me that eating gluten all my life, no matter how fastidious I am at avoiding it now, then likely that irreparable damage has been done to the cerebellum.

I have been GF for over 3 years, DF for over 2 years, also avoid buckwheat, corn too. A CYREX blood test and a very knowledgeable nutritional therapist guided me through the process.

I think that like coeliacs, consuming gluten in those vulnerable will damage the digestive system, causing 'leaky gut' and an autoimmune response. Absorbing nutrients will be a result of this. Its a minefield and I have yet to meet a NHS doctor that fully looks at us and the whole picture.

Good luck, you are at the best with Professor Hadjivassiliou and his team.

Best wishes.

PS Ataxia UK has a new support group online starting for gluten ataxia and autoimmune which might be interesting.

Thank goodness for places like this to share our ideas!

[Smartdoc in reply to penelope2]

thanks Penelope-good to know-thought I was going bonkers.