I just watched a video from the University of Chicago about what to do if you have a negative blood test:
The doc says that the antibodies they test are made in your stomach and have to be in large enough numbers in your blood to be detectable. Isn't it possible therefore that they might not be detectable for one reason or another, if they are not making it into your blood, or you are not producing enough of them? I assume this is why IgA levels make a difference - I can't think what other reasons there might be though! But still, we're only just learning things like people with Restless Leg Syndrome can have high blood counts for iron but that iron isn't making it to their brains. They tested RLS sufferers and found their brains were low on iron - hence iron working for some RLS sufferers (I'm one of them) despite them having perfectly normal blood iron levels.
This is just one of my many 'clutching at straws' posts, which I'll be getting famous for at this rate, but I just bit the bullet today and made an appointment with my doc with a view to further testing/seeing a gastroenterologist and I'm desperate to put the best case I can forward. (I've had no fewer than 3 negative tests, but I do have low IgA, so they maybe don't count! But I have also had an IgG test and that was negative too, so you see my problem!)
If ANYONE knows any reason/s, other that the usual offenders, for having negative test results, or if you had more than one negative test yourself then were found to have coeliac, I'd love to hear from you. I feel undermined already and I haven't even seen the man yet, so any info at all most gratefully received. Thanks!