Blood tests and IgA deficiency

Hi,

You could try discussing the issue with these people to see if they can help:

wiltshireccg.nhs.uk/have-yo...

Sometimes they can mediate on your behalf. Maybe they can encourage your local services to follow NICE guidelines (or find out why they're not!).

The equivalent PALS (Patient Advice and Liaison Service) in my area helped a client I was supporting at the time to resolve an ongoing issue she had.

Best of luck, I hope you can get the answers you're seeking.

I am having this very same problem, my Ttg/IgA was negative, however, my total IgA was 0.98 (the lower limit in range is 0.85) which is low but still classed as normal. I have been on immunosuppressants for 7 years which is probably the cause of my low IgA, but has it given me a false negative test result? I have all the symptoms of coeliacs but are my immunosuppressants falsifying the results!