Hi. I'm new here. Just discovered this group, i feel at much ease going through posts and seeing people in same boat as me. Here's my story, hope you can understand it, just trying to get it out there hoping some one can relate to it and help me.
I was diagnosed with coeliac disease in April 2013, I am 29 years old. I also suffer from hypothyroidism since birth and have been anaemic and low in vit d and folic acid. doc did a blood test which showed ttg level at 17.9. She said it was high, So she advised me to go gluten free. I struggled alot to begin with, I tried alot of different gluten free foods on prescription and supermarket, nothing would taste edible, i kept retching in disgust, the wheat alternative foods weren't good enough to swallow down . I gave up for few months and ate normal bread and biscuits then I got talking to someone in the doctors waiting room who was also diagnosed with coeliac and she turned her life around by sticking to the new diet, she who gave me reassurance to go gluten free. So this year I stuck to gf diet, I had more of the natural foods like potatoes and rice and brown rice pasta and organic fruits and vegetables for 6 months, doc gave me ferinject through iv line which boost up my iron levels and i take vitabiotics vit d tablets along with levothyroxine 100mcg daily. I had my annual review in April this year, my blood test showed ttg level at 1.2, it had dropped which means I have kept it under control. I saw two docs at the time, both with contradictory views. One I went to just to get my results as my usual doc was on holiday, he said my gut has healed,results show its negative so I'm okay now I'm allowed to eat gluten . I stayed gf though to be on safe side. Second doc i saw a few weeks later, she said being coeliac is a lifeterm sentence I will have to eat gf diet for life or else my gut villi will damage again. She was pleased that going gf made a huge difference to my results after a year . But i told her unfortunately i don't feel much better within myself since going gf, i was supposed to put on weight by now but I'm still under 6 stone. I feel tired all the time, I have stomach cramps and bloating. Brain fog sometimes memory loss i forget what i did yesterday, I get bone and muscle aches pains and legs and feet hurt at end of day,i have excess hair aswell as i have hair fall on my head and dandruff and dry skin aswell. I was trying to concieve for past 6 years, but haven't been lucky, main cause was being very under weight. Hubby says we should wait til my gut has healed fully and i reach atleast 7 stone. Doc said it will take time to feel 100% better, could take months or years, just gotta be patient and carry on staying gf. Omg I did my weekly shop yesterday, I brought a range of gf food from sainsburys this time just to try, but I'm struggling as usual, I have to eat something to get through the day. main thing i miss my my toast Warburton bread and Belmont bourbon and custard creams with my cup of tea, I have tried baking at home but i can't achieve a better taste. Arrgh, So many thing's going on. I'm the only one suffering in the whole family. i have lost my confidence. I read on here I should have had an endoscopy done but doc said there was no need as blood test was enough to show i clearly am coeliac . I Also wasn't referred for a Dexa scan plus i need them to check for any other intolerances. I booked an appointment which is in a month's time, I'm doing some homework research on this and I will push the doctor to do some further tests and help clarify what I must do . I just feel confused and depressed..... I thought by sharing on here someone will help me