Best attitude or action to take

[GT33]

I am new to the section,

I have recently, in the start of March 2022, had a surgery to remove the brain tumour,, quite large glioblastoma, on the left side.

I start my additional treatments ( 6 weeks) on April 4th, Chemo & Radiation + Tablet daily.

I used to vape instead of smoking (started over 5yrs ago) and now trying to stop vaping, cut any alcohol I drank ( very little already) change the food I eat, less fattening etc. I have cut out crisps/chocolates etc, dropped my sugar level

Can anyone advise what I should do, to maybe help me live longer (I'm only 55).

I would appreciate any assistance/guidance to help me live longer and healthier if possible

Thank you

[15773]

I am so sorry to hear. My husband (67 years old) was diagnosed with a glioblastoma, grade 4 in December 21. He has coped really well with the chemo and radiotherapy. He tries to walk as often as possible, has completely cut out sugar and eats healthily. He takes cucurmin daily and avoids googling. He has increased his water intake. I'm not telling you anything you're probably not already doing. Some how he manages to stay positive and believes he can keep the tumour under control. I do hope the treatment is palatable for you and wish you all the best.

[GT33 in reply to 15773]

Thank you, I'm trying to be positive etc and hope for a late return it will (apparently). I am trying to change me to be better in eating/drinking better/healthier. Be more their for our kids and family. I just hope I have a few years to go

[I23779]

As someone with a glioblastoma VI, all I can do is echo the earlier suggestion of trying to walk, even short distances (as fully appreciate dependent on fatigue levels), especially when spring finally decides to make a proper appearance.

[GT33 in reply to I23779]

Thank you for the guidance

[Tansi75]

Hi GT33,

You have already made a good start by changing your diet and cutting out unnecessary sugar. When you take your chemo, drink at least a pint of water, this will enable the medication to be absorbed more quickly into your body. Also, if possible, take the chemo before going to bed, so you can sleep through any side effects.

There are a couple of other things you can try, which I call my alternative anti-cancer treatments:-

i. Take food supplements to boost your immune system, I use Higher Natures Immune+ tablets and their Complete Omega tablets (which are good for the brain). I have been taking them since May 2010.

ii. Include the following in your diet, which have anti-cancer properties: blueberries, pecan nuts and turmeric spice. I buy my blueberries from British Frozen Fruits in 2kg bags.

iii. Drink ozonated water, which has more oxygen in it (oxygen kills cancer cells, while sugar feeds them). I use a Sota Water Ozonator, which is portable and can be bought on line. I suggest drinking a pint of ozonated water when you take your chemo.

iii. Google 'The Truth About Food Grade Hydrogen Peroxide (FGHP)', it is an American document, the one I used to make my decision to use it, after it was suggested by a dear friend. I have been taking 5 drops 3% FGHP (Multi-Purpose) in a 1/2 pint of ozonated water 3 times a day since 2010 and believe it has helped me to live longer.

Do not try to do too much exercising before your body and brain has recovered from your treatment. From my experience, I would recommend allowing 12 months recovery time.

Do not waste time researching about survival rates, other peoples experiences, etc., concentrate on living your life in a positive way. Take each day and step one at a time, do not go down the 'what if' route and deal with any issues or bridges to be crossed when they arise.

Most importantly stay positive and believe that you can get through this and have a positive future ahead of you. Take some time out to reflect and decide which direction you would like your life to go after treatment. I really do believe that it is important to view what has happened, as a life changing opportunity. You are at a cross roads and your life can go in what ever direction you what it to.

No matter what, laugh as much as possible, as laughter is a great healer.

Can I ask you and family members to consider completing the Brain Tumour Charity survey, which I recently placed a post about. Your views are just as important as everyone else's, especially being at the early stage of your journey. My personal belief is that everyone's experience of a brain tumour is unique and we can all add our own personal experiences to help improve the future to the better of all.

If you have any questions, please send me a post and I will reply to you.

I wish you all the very best for a good recovery and a positive future together.

Stay safe, well and positive.