saying hi

[Maltakitty]

New to Glaucoma and trying to navigate the condition and treatments with worsening eyesight.

[callie77]

Hi Maltakitty and welcome.You are in the right place if you need questions answered or just someone to talk to who is going through the same thing.

I dont know where I'd be without the help from everyone on this forum.

Iam 65 years old and have been struggling with glaucoma for about 4years ,its a bit of a roller coaster ride.

Anyway welcome to you.

[warwickshire_singh]

Welcome! The best informative website is Glaucoma UK, the RNIB is also very good.

I have Uveitic Glaucoma, I had a Bareveldt shunt done in 2013.

[Trish_GlaucomaUK Partner]

Hello and welcome to the forum.

All of our members are very friendly, supportive and helpful. We are very proud to have such a great forum 👍

If you would like to talk to our Helpline, you can call us Mon-Fri 9:30am - 5pm.

Glaucoma UK also has a YouTube channel, where you can see recordings of all of our past Digital Support Groups with talks from professionals and also from people who have glaucoma, some of them are members of this forum. We also have a Facebook page.

youtube.com/@GlaucomaUK

facebook.com/glaucomauk/

[LMEMDoooo]

hi Maltakitty I have also been recently diagnosed hope you are ok x

[Maltakitty in reply to LMEMDoooo]

Hi. Sorry to hear about your new diagnosis. It can be quite scary and difficult to get the answers you need, so can I share the bits I have found helpful? Glaucoma UK has a fantastic helpline and a wealth of information about the condition, medication, etc. if you go to glaucoma.uk/care-support/su... you will find videos to watch, which I found so informative. The RNIB is another great resource. There may be an 'Eye Clinic Liaison Officer' at your hospital. 😊

[LMEMDoooo in reply to Maltakitty]

thanks so much! Did you find it scary? X

[Maltakitty in reply to LMEMDoooo]

Yes. I had and still have many questions and it's all a lot to get your head around, isn't it? This forum is very helpful. I have a notebook that has all my questions for the health professionals, any info, etc, and print-offs about my eye drops. How are you coping?

[LMEMDoooo]

I think I am coping well and then yesterday had a bit like two blinks of blurred vision and I’m terrified again! But today everything seems as normal as it ever is! It’s a bit like a vicious cycle! Think I am dealing then something incredibly small happens and I feel back to square one!!! Xx thanks for replying x

[Crafty-gran]

hi maltakitty

I’m newly diagnosed and finding it all a bit confusing

Wasn’t really sure what having glaucoma meant ,and what was involved

You seem to get the diagnosis and sent on your way with eye drops

I’m so glad I searched for this support group

And joined glaucoma uk

So much support and information

I joined the webinar a few weeks ago and found it so helpful

I know that previous webinars can be found in you tube . I’ll definitely be watching them