Trab update

[Bemax13]

Hello, Update on trab, it would be 7 weeks post trab tomorrow. I still have some blurry vision just better than previous weeks but my eyes aren't back to normal ( pre -op) . Pressures down to 10. I am a bit worried at the slow pace of recovery but learning to move on with life .

Still on prednisolone eye drops 12 hourly to help with inflammation . Consultant said eyes not completely healed. Sutures haven't been removed yet . I hope it settles fast so I can get my life back.

I have been offered Slt on my second worst eye which has lots of vision loss with significant nerve damage . Has anyone had Slt in their worst eye? I am too scared to accept the laser because of my experience with the trabeculetomy. I am currently on simbrinza and xalatan on this eye and not coping well with the simbrinza

Pls advise. Glaucoma is really a traumatic disease. Taken so much quality of my life!! I pray scientist find a cure for it soon.

[Stairs10]

Hi

This is a trial of patience isn't it. I'm just 4 weeks post trab so I am still on the drops every 2 hours, no bending, no strenuous activity etc.

Is the blurry vision something that can be corrected by different glasses ? I was told I may have to go to optician to check glasses prescription after the trab. But not for about 3 months post op because it can take a while for the eye to settle. Were you told the same thing ?

Best wishes

[Bemax13 in reply to Stairs10]

Stairs10 yes i was told it can take upto 12 weeks for eye to settle and I might need new glasses prescription.

[AlfredV]

Vision can continue to improve many months later. While there is still some redness around the bleb it will have some effect on vision. Also, the surgery may contribute to dry eye (despite watery eyes), which can also affect vision. I have also found that steroids cause some blurriness in vision.

It sounds like the operation has gone well, and while it is hard not to be worried about a degradation in vision, it will almost certainly improve with time, but for me, months was more realistic than weeks.

[Bemax13 in reply to AlfredV]

Thanks AlfredV

[Hidden]

I'm sorry Bemax13 that your eye is taking a while to settle down, it is frustrating I know. My eye was still blurry when the pressure was 10 and it was only once it got into the teens that the blurriness went. I was also told it can take up to 12 weeks for your eye to settle . Patience is definitely required. My prescription had changed completely when I had my eyes tested after my first trab.

[Bemax13 in reply to Hidden]

Thank you Witchie346 for your comforting words. I just want all to settle so I can move on with my life. Sometimes I feel so low and wonder why I have to be down with glaucoma. I also notice that when I am indoors the Blurriness reduce a lot but when i try going out and do little activities it gets blurrier even with my sunglasses on, did you experience this fluctuation?

What do you think about Slt for my worst eye? the thought of having another op is giving me sleepless nights since I am still battling with the trab recovery.

[Hidden in reply to Bemax13]

It's difficult Bemax to be upbeat and positive while your eye is still healing and of course you just want to get on with your life. Unfortunately recovery is very different for us all but when you end up with a positive result it's so worth it and you do tend to forget how long it took to get there. My blurriness was the same both indoors and outdoors apart from at night when I couldn't see at all if caught in the glare of car headlights.

I've never had SLT as I was not a good candidate for it and I can imagine the thought of yet another op is awful for you at the moment. I confess when cataract ops and drops didn't work for me I did cry and think nothing would ever work for me. I however did and do have complete faith in my consultant and when he said I needed a trab I was terrified but agreed. It turned out to be the right decision for me. SLT is a big decision for you to make and I understand your feelings, why don't you explain to your consultant and maybe he can help allay your fears.

I do totally empathise x

[Bemax13 in reply to Hidden]

Thank you so much Witchie346. Did you go private with your consultant? Kindly share his details. I can consult with him privately for a second opinion.

[Hidden in reply to Bemax13]

I went private initially and had my first two ops privately and now I'm on his NHS. My consultant is in Glasgow if that's not too far for you to travel ?

[Bemax13 in reply to Hidden]

That's fine Witchie346. I am ready to travel. Kindly share his details. Thanks

[Hidden in reply to Bemax13]

Ok I will message you with his details .

[Bemax13 in reply to Hidden]

Thank you

[Hidden in reply to Bemax13]

All done x

[Redshoes15]

Hi Bemax, yes I can certainly sympathise about the post trab blurriness, which takes some time to settle and is very hard to cope with. My eye took about 3 months altogether to feel anything like normal. I would advise waiting anything up to 6 months to change your glasses, as the eye keeps changing as it settles. Very frustrating - there is no doubt that this disease presents many challenges.

[Bemax13 in reply to Redshoes15]

Thank you Redshoes15 for the advise. It is indeed very frustrating. Were your eyes still sensitive to light in those three months of recovery? I still have light sensitivity in my eye especially in bright light and sunlight. It is really the fluctuation in vision that is annoying.

[Redshoes15 in reply to Bemax13]

Yes my eyes were (and still are) very light sensitive. I wear wrap around sunglasses even in the shade if I am out walking and of course it makes driving difficult. What a pain it all is! People who do not have glaucoma have no idea what we have to put up with xx

[Bemax13 in reply to Redshoes15]

Yes Redshoes15 it is really traumatising.

[Eahldt]

I’m now a year post trab and cataract removal. Although the surgery has brought down pressure and I’m not currently using drops in that eye I don’t feel my sight is as it was before. I share the experience of not noticing much difference indoors but mid to long distance is a bit blurry and varies according to light conditions. I’m due an eye test in about 3 months so maybe there’ll be a change of prescription but at the moment I’m trying to adapt to what seems to the new normal for me.

[Bemax13 in reply to Eahldt]

Hello Eahldt Thank you for the update . This disease sure has many challenges. Hope they find a permanent cure soon.