Pigment displasia: Hi all, new to the group... - Glaucoma UK

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Pigment displasia

Olyr profile image
Olyr
3 Replies

Hi all, new to the group.

Two months ago was diagnosed with pigment displasia. Was told to stand best chance of treating i need laser surgery right away. So did weeks ago I had it (even though was terrified, have a huge phobia of hospitals and medical things. Went for my follow up this week and was told "it hadn't worked". How feeling very low and scared for the future. Had anyone been through a similar experience and it turned out ok? Completely fine if I need to take drops for rest of my life but will it stop progression of is it only stalling the inevitable? And if so by now much? Any and all experiences and advice appreciated

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Olyr
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3 Replies

Sorry to hear your laser treatment hasn't worked for, it's distressing when a procedure doesn't work. It's even worse when you were brave enough to actually undergo the treatment despite your fears. Many people on here have been on drops for a great number of years and all have retained their vision but your feelings are understandable as this is all so new for you. Did the consultant tell you what his new treatment plan is for you and give you any reassurance ?

Olyr profile image
Olyr in reply to

No new plan shared yet. Hoping to get details at next appointment. Thanks for the encouraging news. I would be happy with drops forever.

Jennymary profile image
Jennymary

I was born with glaucoma, I'm 4th generation, started drops as a teenager, over 40yrs ago, no problems until complications after cataract surgery in 2017 led to me losing vision on left eye and being registered blind, my mum lived all her 88 years with only one good eye

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