Acute Invasive Aspergillosis - Aspergillosis and...

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Acute Invasive Aspergillosis

Aegis82 profile image
5 Replies

Hi all

I just completed the poll about the type of aspergillosis I have, and I saw that there were others with the acute invasive version, but I don't know who or how recently they have been here. If this is something you have, let me know and we can share notes. I gather this is quite rare, so it's possible that all of those with this condition have moved on from the forum, but I thought I'd check anyway!

All the best

Ian

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Aegis82 profile image
Aegis82
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5 Replies
RandomGuy2050 profile image
RandomGuy2050

I had Aspergillus ochraceus 8 years ago, I did 10 months of Sporanox 400mg & have been 100% Cured

Very rough time during the 1st 2 years!

Aegis82 profile image
Aegis82 in reply to RandomGuy2050

That's good to hear - I've not spoken to anyone that got to the point of 100% cured before, so that really is good news.

Aegis82 profile image
Aegis82

Ah, I don't have any issues with my lungs at the moment. My aspergillosis is in the CNS and brain, so slightly different.

Villaman profile image
Villaman

OK I'll have a look at that thanks a lot.

👍

GAtherton profile image
GAthertonAdministratorFungal Infection Trust

CNS aspergillosis can be difficult to treat so it sounds like you are doing well. Newer antifungals are often quite effective and cure is achieved, though not as often as we would like.

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