Peripheral Neuropathy - feet pain

[Vertical]

Hello like spirits. ‘New here. Have pain in both feet. It just increased from cold and numb to adding pain (progressed ~15 years). This is a nightmare both mentally and physically. How did you first begin to cope?

Thanks and regards from Atlanta GA =/

[Marz]

Do you know your levels of B12 - Folate - Ferritin - VitD ? All are important and low B12 can cause neurological issues - including PN - as I know personally. I have B12 deficiency caused by surgery and self inject ...

[Vertical in reply to Marz]

Those levels of B, D, F fall in normal ranges. PN pain has been minor for about 15 years but flared in the last few days to a level 9/10. I was panicky scared first 2 days. ‘Am now reading everything I can on dealing with it - worse >6pm. I’ve got some interim Percocet for unbearable pain until I can see a neurologist next month. Using judiciously.

To make matters worse tremors started in hands about the same time. May be related?

All in all, very uncomfortable and scary re ‘what ifs=(

[Marz in reply to Vertical]

Being in the normal range does not mean OPTIMAL ! Also CFS/ME can often be un-diagnosed low thyroid ...

[Vertical in reply to Marz]

Went to doctor yesterday and gave blood after revealing all symptoms. He said he would check ‘usual suspects’, presumably thyroid indicators. I will otherwise bring it up next visit, this week. Thanks.

[Marz in reply to Vertical]

How did your GP visit go ?

[Vertical in reply to Marz]

He’s gone phooey to support his theory

[Marz in reply to Vertical]

Oh ! - not sure what that means 😴

[Vertical in reply to Marz]

No offense intended but it’s easy to get sidetracked when following a couple of people over several months. Once clear reference can take on a new scenario. Sorry, if me. I try to correct especially if someone else can see the jam up.

[Vertical in reply to Marz]

I forgot the reason behind the comment...maybe this stuff is affecting my brain=&

[Vertical in reply to Vertical]

I’ve gotten a little lost here due to references; I’ve now seen 3 docs: GP, Pain MD, new GP... . IAE, pain doc gave me Percocet 10 (I didn’t need due to having a few leftover 7.5 from previous GP plus Methadone 10; this combo made pain tolerable. M-done is smooth, but 1 tab when up in am and 1in pm bedtime.

[Vertical]

Here’s a small ebook/pprbk that might be of interest: “Small Fibers; Big Problems” a comprehensive users manual by Dr. Levine & 7 other neurologists, re neuropathy, Available at Hilton Publishing co., hiltonpub.com, $16.