Isolated: Hi there. Is there anyone in... - Foggy's "Invisibl...

Foggy's "Invisible Illness" Support

5,529 members627 posts

Isolated

Pendleton profile image
8 Replies

Hi there. Is there anyone in Grimsby area who suffers with peripheral neuropathy. I would love to talk to you as I feel very isolated.

Written by
Pendleton profile image
Pendleton
To view profiles and participate in discussions please or .
8 Replies
Lizziesview profile image
Lizziesview

Hi Pendleton.

I'm so sorry that you're feeling isolated. As PN isn't such a well known condition, I'm afraid many of us feel like you.

I don't live near you, however, I have found some comfort from this site, especially knowing that I'm not the only one and others understand some of the pain.

Wishing you the very best - stay strong! Lizzie x

BigBill profile image
BigBill in reply to Lizziesview

I'm afraid I don't know where Grimsby is

Pendleton profile image
Pendleton in reply to BigBill

Thank you so much. Let's hope in time a cure will be found. By the way Grimsby is in NE Lincolnshire on the R. Number. Best wishes Pendleton

Pendleton profile image
Pendleton in reply to Lizziesview

Thank you so much and best of luck

. Maybe eventually a cure will be found.

chriscameron48 profile image
chriscameron48

Hi there, sorry, but I too am not near Grimsby. I live in Fife, in Scotland &, like Lizzie, understand how isolated this condition can make you feel. There are no easy answers to PN unfortunately. I think most of us get by learning how to be as content as we possibly can be in our own company. If you search this site, you will find that there are many people who are struggling with the severe pain & feelings of isolation that go along with PN. I know words don't help much, but I can promise you there are many of us feeling very much like yourself. You are not alone in the way you are feeling! Wishing you as much happiness as possible. Sincerely, Chris x

Kclrgtj profile image
Kclrgtj

Isolated ( grimsby) don’t feel alone I myself Have p.n. In my low extremities from a low b12 and my feet feel heavy making it hard to walk lift my feet. I take 4x a day folic acid b12 shot once a month two vitamin d’s and calcium citrate. I have no pain but my feet are heavy and I move slowly with leg braces canes and walkers. I do 5 pound weights stretching my legs toe raises and heel raises trying to raise my toes as much as I can. Toe raises stand up hold on to a chair or walker and raise your toes and I also sit down and from heel try to lift your toes as best you can sitting in in a comfortable chair. Don’t forget a lot of us are in the same boat with different reasons with p.n. That as we speak right now there is no cure but having it monitored and physical therapy along with occupational therapy helps the mind and body. Keep busy don’t dwell on it. All the best . GREG 😀

Pendleton profile image
Pendleton in reply to Kclrgtj

Thank you. Let's hope a cure will be found in time. Best wishes Pendleton.

Kclrgtj profile image
Kclrgtj in reply to Pendleton

Thankyou and to you the same!

You may also like...

Looking for help with isolation and symptoms please

it will help me feel less isolated and disconnected from other people. I’ve been very ill with...

Non diabetic neuropathy

Hi I'm suffering from non diabetic neuropathy and I can't find any relief I was on gabapentin but it

had this CFS thing for 25 years, want to get a diagnosis

people. Has anyone got a diagnosis and can you give any advice as to how to go about it. Thank you

New girl on the block

Living with Scoliosis

access to a pool :(. If I did, I would be swimming ALL the time! I love swimming! I am currently...