neuralgia Trigimal: It's the most... - Foggy's "Invisibl...

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neuralgia Trigimal

isabellcorrie profile image
5 Replies

It's the most horrible thing to endure.I was given Pegabline also Amtritolin also co=codomol quite strong it helped

but could still feel the pain, numbed but still their I'm now awaiting my appointment to hospital. hope you get through

this night mere good luck izzy corrie

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isabellcorrie profile image
isabellcorrie
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christmascj profile image
christmascj

I have had trigimal for 3 years now, I take oxcarbazaìna, I was OK for a year taking these tablets, but 6 months ago I had a bad flare up, so now I have to take double the amount 600, 300 in the morning and 300 in the evening, also I have to take 200 vimpat with them, 100 and 100.

I am still have flare ups during the day, but if I increase the tablets I fall a sleep and feel very dizzy. I would like to no more about the operation you can have to kill the nerve. I have heard so many stories about different ones.

I would like to hear from any one who has had an operation.

christmascj profile image
christmascj

I have suffered with neuralgia Trigimal for near one 4 years now,

ask your doctor for Trilptal oxacarbazapina they come 600, or 300 mg. They are fantastic

I now take 300 in the morning and 300 at night, I never miss taking them as I now the pain will come back.

I have had relapses in the pass , as you are never free of the pain lurking in the back ground, its there waiting for you to stop the medication. Its an awful complaint, you do not look like you are in pain, and people can not relate to it.

They often think you are making it up, I have passed out in the pass and had to to rushed to hospital, I find even the hospital staff are not aware of the pain one is in. I am lucky my husband is very understanding, but my advise try and find a doctor who understands this complaint, I have a head scans, back of my eyes have been scanned, my jaw.

I have very good neuro surgeons. I live in Spain, and the health services is excellent.

Good luck.

Christina

.

christmascj profile image
christmascj

I have had neuralgia trigimal for many years, I have been given different types of medication I am now taking Vimpat, so far so good. 100 morning 150. evenings

Its very expensive but its the last resort.

My surgeon said if this does not work Botox will be the next step.

You could try oxcarbazapina(trileptal) it worked for me for a long time,

but you must have blood test every 3 months, this is what I found out when i collasped

it drains the salt from your body and my first surgeon did not do this.

I would still be taking these, but my new surgeon put me on Vimpat.

I wish u luck you must push for an urgent appointment.

christmascj profile image
christmascj

I would try an avoid an operation. it could go wrong and your face can collapse..

ponypooh profile image
ponypooh

Hi.i was detected for neuralgia within 2 months of severe pain in right jaw.Doctor asked me to get admitted in hospital and there I was given dosage of steriods .somewhere I was not convinced with getting operated.so I decided to go for homeopathy medicines,while sleeping I avoided pillows below my head rather started taking pillows bellow my legs .so that my head nerves get better circulation.ive also maintained my diet reduced junk food I only opt healthy food.with help of medicines and good deit my pain is reduced to 1% that too occasional pains .

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