FND (formerly known as "Conversion Disorder," "Hysteria," etc.) is unfortunately, being slapped on patients by docs that are too lazy to figure out what actually going on with patients.Likewise, modern medicine still knows very little about the human body & thus does not have tests to identify everything that goes wrong with it. But docs MUST appear to have answers (and be able to bill insurance companies) so they claim that unexplained symptoms are mental in origin. It's a travesty. So many friends of mine nearly died or were left with permanent injuries/disability because doctors assumed they're symptoms were "mental" & presribed psychiatric/psychological interventions instead of real medical treatment.
Please be aware...Xanax is only approved for short term treatment (few weeks max). Sadly, docs write scripts for years or decades, never bothering to tell patients that it's benefits/calming effects are short lived (due to neuroadaptation) yet adverve effects worsen the longer a patient is on it (as with any psych drug or med that alters neurotransmission/neuroreceptors).
Benzodiazapines can actually cause a paradoxical worsening of anxiety (frequent panic attacks, or even akathesia--which can be deadly), along with a host of other psychiatric symptoms (iatrogenic med-induced psych disorders), and physical symptoms & health problems.
Additionally, withdrawal syndromes can be severe & prolonged & virtually no doctor is properly trained in slow, safe, tapering regimens, nor are they trained to identify withdrawal effects, thus leading to patients receiving addtional unnecessary & harmful psychiatric disorder labels.
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skeetbeet
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Its not just FND labels, many people ( women especially) end up getting fobbed off with Fibro, CFS, depression, anxiety or Menopause. And those labels follow you around like a bad smell. And everything that ever ails you is blamed on that. You are right its lazy, cant be arsed, patient blaming.
The breathe work practitioner I see suffers from pain in his limbs. His doctor diagnosed Fibromyalgia, when pressed the doctor said if we can't identify the source of pain we tend to call it Fibromyalgia!
They pluck a diagnosis out of their a**e like some sort of rabbit from a hat. I was diagnosed with Ehlers Danlos around the same time as Fibro. EDS is a genetic connective tisssue disease causing a myriad of symptoms, most of which are the same as Fibro.
Chronic pain, fatigue, migraines, digestive problems, sleeping issues. I dont think I have Fibro at all. I have EDS for sure. But that Fibro " diagnosis" has followed me around since 2008.
I would have far more respect for a doctor who admitted they dont know what is causing your symptoms. At least its honest. But coming up with names like CFS, CPRS, FND, CD ( aka hysteria) and blaming depression, anxiety, unresolved trauma or the fact you didnt get a pony for your 11th birthday, its just crap.
Millions of people suffer from depression, anxiety, abuse, neglect, horrible childhoods, wars, famine, PTSD. They dont end up with FND though. Yet we get people who have had normal lives, with happy upbringings, no major upsets or issues, who get FND symptoms.
The answer is out there, doctors are either not looking or dont care. They used to believe MS was hysteria as well. They know better now. Whether the cause of FND is found, I hope so. Whether in my lifetime or yours, well that's the million dollar question.
Yes! I was also told by my Rheumatologist that Fibromyalgia is not a diagnosis. Its a term that describes the symptoms being experienced but its a syndrome not a disease. Super helpful right? 😑
I think that the least patients should expect is honesty. As far as the professionals are concerned they need to be honest with themselves.....' we don't know what causes this' creates space for learning.
I can no longer count on my hands the amount of times I actually needed antibiotics and walked around for months with active bacteria infections that worsened to the degree of hospitalization still only to be sent away and told "we dont know" and ending up back at the hospital needing to be admitted. They cannot tell you about your illnesses because the ignorance in medicine is probably the cause. Patients should not need to educate themselves about their illness. The doctor should be doing that, yet they tend not to even listen let alone teach patients. Its unfortunately a major healthcare crisis when it comes to quality of care. Especially if you are considering the cost to quality value!
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Friend with FND. Lost hope in life
Alternatives to FND diagnosis - maybe helpful???
What therapy if no signs of psychological problem ?
Change to the UK law regarding being sectioned
Physical Rehabilitation for FND Patients at the Mayo Clinic
