Do many of you ever have a good day, ever day seems the same to me always bad, my head feels like its swimming and as for my dizziness I have to hold on to something to support me if standing or walking I can't do this anymore. I feel totally useless I can't just sit all day and everyday I need to get a life .
I know many of you are in a position or even worse than me , I'm sorry for going on 😞
Hello little cook.Firstly never feel you have to apologise for how you're feeling or going on about it. I have several things going on. And FND causes the same problem with dizziness and lightheadedness. And with that comes fatigue. I have had had a few good days here and there. So don't give up on yourself. Anxiety definitely exacerbates things. Have you tried deep breathing? I know some people think it's mumbo jumbo. But it does calm the nervous system. And do you have a good GP? Mine referred me to a neuropsychiatrist who I see every few months and she has been terrific.
Anyway. Be good to yourself. I hope things improve for you. It really is an awful condition but things can improve.
Hazel.
I’m jealous! My insurance company told me there are only 3 neuropsych doctors in the entire state of NJ and I have no hopes of seeing one. I have to submit a written appeal just to see a regular psychiatrist with my crappy insurance. Reading comments on here similar to yours, it seems clear to me that my 16 years of suffering without help have everything to do with my insurance. So many treatments I’ve seen on this site that my doctors have never heard of and my insurance won’t cover.
Hi, I was diagnosed last year and I have months-years with no symptoms and then I’ll have a week-months with leg weakness. Then I’ll wake up and be completely fine. I’ve been trying to find anyone like me….it seems like many with FND don’t seem to get these long periods being symptom free. However I still don’t know what the trigger is when the symptoms present
Hi, we have had weeks/months of symptom free and I think its when my son isn't stressed/anxious although not really aware when he is. Think low interoception, I try and breathe and not over-react when he displays symptoms as pretty sure it make matters worse but its a learning curve for sure and it comes from a place of love.
hi no need to apologise for going on , yes I’m the same just seems to be a constant flat line of bad days and if I try and do a little bit more then the day drops to really bad , with mine it fatigue and pain and with the littlest in stress it brings on the tremors and if stress gets worse I fit and knocks me so bad , but it so hard like you said can’t just sit there need to get a life , I find myself just sitting there on the floor I can’t read I forget the page I read before , I have bought a wild bird feeder station, and lots of birds come , it’s right near my patio door so I get to see that but I pretty much either watch the tv ,or watch the birds , if I’m up to it I put a record on that sums up my day it’s hard like you said and I know how you feel
I hate FND so much
Have a good weekend
