Blood oxygen level-dependent (BOLD) signal variability is a measure of how much a brain's blood oxygen levels fluctuate over time. It can be used to study brain function in functional neurological disorder (FND).
Good find I know there are some neurologists who do not agree that FND is a psychiatric condition and I think this will support their theories about this.
Yes, I am so glad they have now got a spoon to do some serious stirring. Some patients are sent down the mental health route, which is inappropriate for them and at the same time rejected by other disciplines who don't want to treat a condition labelled as psychiatric.
Me too and I also hope this helps them to move from the old paradigm that if there's no structural damage (eg to our brains) 'it must be psychiatric' and the very damaging approach of telling people that a) no other diagnosis will ever emerge and b) that we reject psychiatric diagnoses because we are prejudiced against people with psychiatric diagnoses.
However I note they are still saying stuff like symptoms being inconsistent with 'classic' neurological conditions which can make those of us with rare or underreported/under diagnosed neurological conditions more susceptible to a misdiagnosis of FND. And there are still far, far too many barriers to recording a misdiagnosis of FND. I also think that badly given FND diagnoses need reporting too eg that of a woman who was diagnosed with FND during a 3 minute consultation with a neurologist in a corridor who then told her to 'google it' when she asked for further information.
Thanks for sharing this. It’s really encouraging that this study has been done. I hope that it is widely circulated in the medical profession and more work is done on this There must be a way to stabilise blood oxygen levels… I’ll look into that today. Imagine if it were that easy…
Still a long way to go, but it gives us hope for treatment other than what already exists, and which is not widely available. The article didn't say whether the BOLD problem is present in other neurological conditions... work in progress maybe. The mention of 'effective treatment' in the article, might, I suspect have a Swiss bias. Soon be time for your visit to Rosa Burden .. hoping they can help.
1. We also had a brain and full spine MRI a few weeks ago and it was all clear, so that’s good.
2. The GP is being incredibly supportive.
3. The neurologist who gave the original diagnosis has agreed to see my daughter as an outpatient in clinic.
4. We’ve had a call about restarting NHS neuro physiotherapy again as my daughter was discharged after one session last summer.
5. The z health practitioner has given us a vibration pad to use for an hour a day (in intervals) because my daughter has no sensation in parts of her feet and lower legs. After she’s been on it she says she feels energised and it improves her gait a little.
So it’s all going in the right direction at the moment. 🙏
I saw a Re-Active interview with Stella (check videos think last May) and they worked with increasing her sensation to the point a pedicure felt painful.
Pretty sure they used Graphesia testing and mirror therapy from recollection.
We also used arch supports for gait issues as my son was a bit flat footed and thane band exercises to strengthen his ankles following with a couple of physio appointments.
Our blood oxygen levels are measured during a basic health check up but you can buy the device to monitor regularly (make sure you get a good one as false readings will cause additional stress which isn't good).
That's all good news .. I have been trying an 'earthing mat' and spray on magnesium oil to reduce my hypersensitivity, but both just make me jitter or shake, so back to square one. This condition certainly keeps us busy.
But your not giving up searching for answers, so kudos to you.
My son has recently taken a fall and gone over in his ankle. I was researching compression and this is good for hypermobility too. I opted for bandage wraps for his ankle.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
I know there are some neurologists who do not agree that FND is a psychiatric condition and I think this will support their theories about this.
Could this be a cure for FND?
career & life advice for fnd
Healthcare is a joke for FND-Major frustrations
Astrological Patterns for FND
