Antidepressants and FND: Hello. I was... - Functional Neurol...

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Antidepressants and FND

Aberheart profile image
20 Replies

Hello. I was wondering how many of you are taking anti depressants with FND. Have you found them helpful or the opposite?

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Aberheart profile image
Aberheart
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20 Replies
Lecture profile image
Lecture

For my part, I am on a low dose of antidepressants for my FND and I benefit from supportive psychotherapy that help me in addition to spiritual accompaniment by reading theological books.

Yours

Lecture

Gree22 profile image
Gree22

Hi

I have been on them for decades. I was on Imipramine for the majority of this time and they were extremely beneficial. Unfortunately, last June I had a heart attack and I was no longer able to take Imipramine. The doctor has switched them a couple of times to see what works best. I would say, however, that Imipramine is still the best I've had and wish I was still able to use them.

Lecture profile image
Lecture in reply toGree22

For myself, I have got Escitalopram

Lady4 profile image
Lady4

I think with any medications the benefits have to be significantly higher than the risks and if I were the sufferer I would go down the holistic path, self love, breathing techniques, meditation, sensory inputs and managing techniques and then really try hard to focus on what is getting better (not worse).

Shimmyaway profile image
Shimmyaway in reply toLady4

I find it of concern that mental health professionals recommend anti depressants /anti anxiety medication without even knowing if your levels of serotonin/cortisol etc are outside of the norm. You wouldn't get that with meds for physical conditions..they do tests first... and serotonin syndrome, which you can get from taking SSRI's is dangerous.

Shimmyaway profile image
Shimmyaway

I am not on anti depressants despite being offered them, Having tried a minimal dosage of an SSRI .. just 2 tablets quickened the tremors and led to paresthesia ..so ditched them. I think just having FND and realising that so little help is available from the medics, makes you feel down . but is that depression ?

Aberheart profile image
Aberheart in reply toShimmyaway

No but I wonder if it helps relieve anxiety? Some anti depressants are offered for anxiety and stress behaviours.

Lady4 profile image
Lady4 in reply toShimmyaway

No I don't think thats depression. Isn't depression the fact you sink so low that you feel it impossible to climb back up. I feel anger and frustration at lack of support, not just for our situation but for other sufferers of FND.

What are the test to dhow if your levels of serotonin/cortisol are outside the norm? Pretty sure I asked our GP for a cortisol test but they said they couldn't just do one based on my concerns. From recollection, I think it was to do with hormones. My son sufferes from tension headaches and lack of sleep.

Shimmyaway profile image
Shimmyaway in reply toLady4

I think the docs can do blood tests for cortisol and serotonin...but no idea if this actually happens.

I think there are different kinds of depression, some marked out by a chemical imbalance ..a complicated area I imagine.

Lady4 profile image
Lady4 in reply toShimmyaway

I requested them for cortisol young adolescent but denied as no medical need (according to them). I thought it was related to headaches.

Shimmyaway profile image
Shimmyaway in reply toLady4

Cortisol is a key player in the fight and flight response ..not sure if it is related directly to headaches, but it is related to muscle tension , which as you say, elsewhere, can be reduced using more holistic methods than meds... and probably not available via the NHS.

Lady4 profile image
Lady4 in reply toShimmyaway

I found an article on it that related but have so many downloaded 😊

Shimmyaway profile image
Shimmyaway in reply toLady4

It does look as if ,to your credit, you have got yourself a full time job looking at all the possibilities to get some improvement in your son's condition... the investigation level with the NHS is very shallow. You may not realise, but it seems you are getting more attention at the 'Children's ' than you might get at the adult mental health trust on our patch, going by my experience .. one tel consultation, talking therapy with no outcome and then discharge! So long live DIY.

Lady4 profile image
Lady4 in reply toShimmyaway

It was a 2yr battle and ended up with Camhs referral nearly a year after he agreed to "talking therapy" with the Neurologist (the referral was done late to a dead end). I am at a loss tbh and off work myself now.

Sacsac2024 profile image
Sacsac2024

taking Celexa, an anti-depression for many years even before being diagnosed with FND. When I stop taking it, my wife says I’ve become testy.

Lady4 profile image
Lady4 in reply toSacsac2024

Is that immediate withdraw or gradual reducing dose?

Pennybun profile image
Pennybun

I've just started a newish antidepressant called Vortioxetine. I'm on the low dose of 5mg for 4 weeks now and am finding it highly effective against depression. I got as low as you can go before starting on it so relieved to not be there anymore. Not sure about its value in anxiety relief. I take a benzo called Clonazapam PRN for my (daily) functional seizures to that's probably knocking out the anxiety as well.

Aberheart profile image
Aberheart in reply toPennybun

I’m glad this is working out for you. It seems to be a case of finding the right one that suits which involves a bit of trial and error in some cases. I’m glad you found the right one that works well for you.

Pennybun profile image
Pennybun

Ahh thanks for the kind words. I hope things are, or will be, working out for you too. Warmest wishes coming your way.

Analogue45 profile image
Analogue45

I been on antidepressants and numerous medications for ment health for about 20 years and still got fnd,, I didn’t know there were prescribing antidepressants for fnd,, I can’t see how that would help at all tbh , I think everyone will be down depression ect but that be because of how the fnd has ripped through lives , so it’s not mental health imbalance it because it’s just a shi# situation to be in ,, as for anit depression tablets to help FND I don’t believe it I on a lot of tablets max on antidepressants ect but my fnd came through with a mighty slap, think doctors have no clue at all and on commission prescribing antidepressants, they think there helping you just by prescribing tablet I would certainly think twice about antidepressants the side effects and the small print taking this medication has signs of effecting depression, it’s a billion dollar industry big pharma I stop going on I be writing all day but I can’t see antidepressants helping at all , take care

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