Please remember it’s not what the illness is caused it’s how your life is impacted by it I hope that helps and ma y of us get disibility benefits so yes.
Hi thereI have FND and it causes me mobility issues. Your doctor is incorrect fnd is a recognised disablity the way it was described to me which I find easiest for people to understand is that your body is like a computer, the hardware I.e muscles,nerves etc are working fine but your software I.e brain is not working right causing issues in your hardware. facebook.com/joshaw.fnd/vid.... This shows doctor explaining fnd. If your worried about pip application there are companies out there like citizens advice and scope who can help also adult social services could help. It is also worth getting in contact with adult social services as they can help with funding if you need any adaptations, also if you need physio they can help with referrals for items like wheelchairs or frames if this is an issues for yourself, this takes time and if you need a wheelchair in the mean time the red cross hire them at a very reasonable rate.I understand it's nerve racking applying for pip but I'm sure it will be alright after all the worst they can say is no, then you can appeal but that's jumping the gun. I hope this helps and you get all the support you need 😊
Thank you so much for your replyI also suffer from brain injury and have difficulty with memory issues.
I cant retain to much.
I forgot to say I live in northern ireland and trying to get decent help even from a GP is difficult. I have applied for PIP.
I am just trying to find out as much as I can from those who suffer with FND and I can see that regardless of my GP saying it is not a disabilty, FND is a disabilty.
My Daughter suffers from FND and like people have mentioned this can be debilitating. It's not only your GP that doesn't understand it, the NHS in general just put it down to a mental illness. We have to fight for our Daughter on a regular basis. She does get PIP which I believe is mainly due to her mobility issues and seizures. However, as people on this site know FND can be different minute by minute and there is no one size fits all. Apply for PIP and my advice is to apply based on your worst possible day not on how you feel on the good days. Good Luck.
Hi there, it is a lengthy process, I had to appeal the first rejection, but when approved, got back pay from when I first applied. I'm in Australia. I had a few specialists reports for my different conditions. Just explain your brain fog, they are very helpful. Keep notes to help. Hope it goes well. Take care. Moni
Hi, FND is a disability. If you look at the legal definition of disability. Regarding PIP - I have done PIP claims for many years (not for FND but for ME/CFS) and the best advice I can give is to use 'Benefits and Works Agency'. Google them, You have to subscribe (£15/20) per year but you only need to subscribe for the year you are doing a PIP claim to gain access to their members only guides. They have guidelines on how to answer the PIP questions which are written by solicitors, they give fantastic tips on what to include, how the DWP look at the questions and the criteria they use to decide, which questions are linked to each other (by the DWP). It is the best money I have ever spent. I went from denied award to enhanced for both daily living and mobility with a repeated award for over 15years now. I have just done a PIP claim for my partner using their guidelines for his FND.
Hi Zulu, After my assessment with a not so nice assessor, and I had to record it myself as they would not record it. I was faced with having to tell them when they came back with their decision that it was unfair, the assessor had lied. I asked them to listen to the recording to hear it for themselves. After my sending the MP3 file for them to hear how I was treated. They said they could not listen to it because of security reasons. However, and I was really shocked. The day after my complaint I was awarded the enhanced payment.
If anyone is reading this, record your assessment because they cannot argue with the truth.
Thank you Zulu, I am a member of Benefits and Works Agency. But because of the severity of my brain injury. I could not read or retain much in there. It is a helpful place to go for help and a blessing for people. It was just my brain not function to retain much.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.