FND and PIP: Can I ask people who... - Functional Neurol...

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FND and PIP

Lady70a profile image
11 Replies

Can I ask people who suffer from FND. Do PIP recognise this as a disability?

Is there any reason that PIP could reject a claim for someone with FND?

I am very perplexed with this diagnoses.

A GP told me FND is not a disability, yet I keep reading that FND is a disability.

Any advise will be most appreciated.

Thank you.

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Lady70a profile image
Lady70a
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11 Replies
Jofisher profile image
Jofisher

Please remember it’s not what the illness is caused it’s how your life is impacted by it I hope that helps and ma y of us get disibility benefits so yes.

Fireflygem profile image
Fireflygem

Hi thereI have FND and it causes me mobility issues. Your doctor is incorrect fnd is a recognised disablity the way it was described to me which I find easiest for people to understand is that your body is like a computer, the hardware I.e muscles,nerves etc are working fine but your software I.e brain is not working right causing issues in your hardware. facebook.com/joshaw.fnd/vid.... This shows doctor explaining fnd. If your worried about pip application there are companies out there like citizens advice and scope who can help also adult social services could help. It is also worth getting in contact with adult social services as they can help with funding if you need any adaptations, also if you need physio they can help with referrals for items like wheelchairs or frames if this is an issues for yourself, this takes time and if you need a wheelchair in the mean time the red cross hire them at a very reasonable rate.I understand it's nerve racking applying for pip but I'm sure it will be alright after all the worst they can say is no, then you can appeal but that's jumping the gun. I hope this helps and you get all the support you need 😊

Lady70a profile image
Lady70a in reply toFireflygem

Thank you so much for your replyI also suffer from brain injury and have difficulty with memory issues.

I cant retain to much.

I forgot to say I live in northern ireland and trying to get decent help even from a GP is difficult. I have applied for PIP.

I am just trying to find out as much as I can from those who suffer with FND and I can see that regardless of my GP saying it is not a disabilty, FND is a disabilty.

It doesnt help having a GP who is unhelpful.

Thank you so much for your reply :)

Celestite

WorriedPappa profile image
WorriedPappa

My Daughter suffers from FND and like people have mentioned this can be debilitating. It's not only your GP that doesn't understand it, the NHS in general just put it down to a mental illness. We have to fight for our Daughter on a regular basis. She does get PIP which I believe is mainly due to her mobility issues and seizures. However, as people on this site know FND can be different minute by minute and there is no one size fits all. Apply for PIP and my advice is to apply based on your worst possible day not on how you feel on the good days. Good Luck.

Lady70a profile image
Lady70a in reply toWorriedPappa

Thank you for your replyI am sorry your daughter suffers with this.

I am still trying to take it all in.

Thank you :)

BORROW11 profile image
BORROW11

I think PIP is only given on symptoms and how these affect your daily life ie disability and illness rather than the diagnosis itself.

u28jb20 profile image
u28jb20

I receive pip for my fnd. Apply based only on your worst day and don't give them any positives to latch onto.

Lady70a profile image
Lady70a in reply tou28jb20

Thank you for your replyI am really perplexed by this FND thing.

Im having difficulty today with what to write.

I will come back when my brain is working better :)

MONIREN profile image
MONIREN

Hi there, it is a lengthy process, I had to appeal the first rejection, but when approved, got back pay from when I first applied. I'm in Australia. I had a few specialists reports for my different conditions. Just explain your brain fog, they are very helpful. Keep notes to help. Hope it goes well. Take care. Moni

Hi, FND is a disability. If you look at the legal definition of disability. Regarding PIP - I have done PIP claims for many years (not for FND but for ME/CFS) and the best advice I can give is to use 'Benefits and Works Agency'. Google them, You have to subscribe (£15/20) per year but you only need to subscribe for the year you are doing a PIP claim to gain access to their members only guides. They have guidelines on how to answer the PIP questions which are written by solicitors, they give fantastic tips on what to include, how the DWP look at the questions and the criteria they use to decide, which questions are linked to each other (by the DWP). It is the best money I have ever spent. I went from denied award to enhanced for both daily living and mobility with a repeated award for over 15years now. I have just done a PIP claim for my partner using their guidelines for his FND.

Lady70a profile image
Lady70a in reply to

Hi Zulu, After my assessment with a not so nice assessor, and I had to record it myself as they would not record it. I was faced with having to tell them when they came back with their decision that it was unfair, the assessor had lied. I asked them to listen to the recording to hear it for themselves. After my sending the MP3 file for them to hear how I was treated. They said they could not listen to it because of security reasons. However, and I was really shocked. The day after my complaint I was awarded the enhanced payment.

If anyone is reading this, record your assessment because they cannot argue with the truth.

Thank you Zulu, I am a member of Benefits and Works Agency. But because of the severity of my brain injury. I could not read or retain much in there. It is a helpful place to go for help and a blessing for people. It was just my brain not function to retain much.

👍

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