Trapped in my body

[Loves22read]

This is how I feel.

[MONIREN]

I totally understand, I have all these things planned to do, and sometimes nothing happens. I'm fortunate that I don't go to work, I have a window of an hour to get anything done. Wish there was a solution. I was a commercial cleaner before, so have ways of keeping place reasonable. When I cook, I make extra and freeze for my bad days, that way we still eat well. Sometimes medication is the culprit, but when you are on a variety, which one and can you live without it. Don't stress. You can't climb a mountain in one step, but you can, one step at a time. Take care. Moni

Up and go gone

[Loves22read in reply to MONIREN]

So true! I’m disabled now because of my FND and you would think that was great. But it’s not when I have 4 kids still Living at home including 3 teenagers as well as my husband who is facing his own mental demons and works very hard to support us. None of them truly understand why I’m staying in bed so long.

Currently I’m in a flair up which makes walking very difficult (using cane right now) and with the brain fog, dizziness and fatigue.

[Loves22read in reply to Loves22read]

Btw- loved your monkey!!

[MONIREN in reply to Loves22read]

It is difficult to get ones to understand, I've spent years with chronic pain and depression. It is a viscous downward cycle, it's hard to get off. I've been to 2 pain management clinics, 20yrs apart. What helped me the most was video Arthur's amazing transformation on YouTube, it was played at clinic. Baby steps. I was also in and out of hospital for severe depression. All I can do is tell you what helped me the most, writing down my feelings, you don't need anyone to read it, just part of healing. I'm off antidepressants for years, as they affect my other health problems, I'm still struggling, but every day I keep trying is a plus. You have to find your inner strength, what makes life worth it. Don't give up. All the best. Moni

[Loves22read in reply to MONIREN]

Thanks

[tabey in reply to MONIREN]

I really love this post and wise words indeed

[WesleyBuck]

How true! I’ve been dealing with FND for about 6 years and only received a diagnosis a couple of weeks ago. It has been really bizarre reading through all of the posts on here and how similar they are to each other and myself. Trying not to commiserate, but at the same time it’s a little comforting to know others are dealing with exactly the same struggles. I miss being able to physically do whatever I want, whenever I want!

[Loves22read]

I underdtand completely! We are all in the same boat as it goes up and down the storm swells. Hold on tight to the rail and you should be ok once the storm passes.